Faculty of Health and Welfare, Østfold University College, Fredrikstad, Norway.
Nurs Open. 2022 Jul;9(4):2217-2226. doi: 10.1002/nop2.956. Epub 2021 May 30.
The study includes health-related quality of life for people in Norway with multiple sclerosis who live at home and are in a wheelchair (N = 6). The purpose is to show how they experience living with a chronic disease such as MS and how they perceive their own situation. How they value their own health and what leads to positive consequences is central to this study.
The study has a qualitative design to show what health-related experiences they had while living with MS.
The interviews were conducted in their home and later transcribed. An interview guide with open-ended questions was used. The transcribed material was analysed with a thematic analysis.
Key themes were being free and independent, threat to the self and one's identity, and adaptation to MS. Free and independent in everyday life was essential for all the informants. Being dependent on others for basic needs was something they sought to avoid. Adapting to the new situation of changing roles was a challenge that required a lot of them.
本研究包括挪威多发性硬化症患者的健康相关生活质量，这些患者居家且使用轮椅（N=6）。目的是展示他们如何体验患有慢性疾病（如多发性硬化症），以及他们如何看待自己的情况。他们如何重视自己的健康，以及什么导致了积极的结果，是本研究的核心。
本研究采用定性设计，展示他们在患有多发性硬化症时的健康相关体验。
访谈在他们的家中进行，随后进行转录。使用开放式问题的访谈指南。转录材料采用主题分析进行分析。
主要主题包括自由和独立、对自我和身份的威胁，以及对多发性硬化症的适应。日常生活中的自由和独立对所有受访者来说都是至关重要的。他们试图避免依赖他人满足基本需求。适应角色变化的新情况是一个挑战，需要他们付出很多。
