Croudass Anne, Stephens Richard
CRUK Lead Research Nurse, 2 Redman Place, London, E20 1JQ, UK.
Patient and Public Representative, 18 Russell Close, Stevenage, PB, SG2 8, UK.
Res Involv Engagem. 2021 Jun 1;7(1):35. doi: 10.1186/s40900-021-00279-w.
In July 2020 Cancer Research UK undertook a rapid review of the studies in its clinical research portfolio to assess the impact of the Covid-19 pandemic. The review examined over 160 research studies funded by the charity, and in keeping with its usual practice, the charity involved patient/public contributors in the review process.
Cancer Research UK (CRUK) spends over £450 million pa on research, including clinical trials, tissue collections, laboratory science and biomarker studies. It has involved patient/public contributors in clinical research funding decisions for ten years, recruiting volunteers from the National Cancer Research Institute's (NCRI) Consumer Forum. The NCRI is a partnership of funders, including the 4 UK governments and major charities such as CRUK. Its Consumer Forum is a group of volunteers with personal experience of cancer as patients or carers, who are trained for and experienced in working on national strategic bodies as well as on individual research studies. The CRUK whole-portfolio review was held over a two-week period in a series of online meetings. A pair from the team of patient/public contributors was included in each meeting, and they made comments on every application reviewed as well as participating in reaching decisions.
The process not only demonstrated CRUK's continued commitment to involving patient/public contributors in their funding decisions, but also provided an opportunity for these contributors to take a holistic view of processes to inform future patient/public contribution in the charity's work, as well as to influence the decisions about the individual studies being reviewed.
2020年7月，英国癌症研究中心对其临床研究项目中的研究进行了快速审查，以评估新冠疫情的影响。该审查研究了该慈善机构资助的160多项研究，并且按照惯例，该慈善机构让患者/公众参与了审查过程。
英国癌症研究中心（CRUK）每年在研究上的花费超过4.5亿英镑，包括临床试验、组织收集、实验室科学和生物标志物研究。十年来，它一直让患者/公众参与临床研究资金决策，从国家癌症研究所（NCRI）的消费者论坛招募志愿者。NCRI是一个资助者联盟，包括英国的四个政府以及CRUK等主要慈善机构。其消费者论坛是一群有癌症患者或护理人员亲身经历的志愿者，他们在参与国家战略机构以及个别研究方面接受过培训并富有经验。CRUK的整个项目审查在一系列为期两周的在线会议中进行。每次会议都有一对患者/公众参与团队的成员参加，他们对审查的每个申请发表意见，并参与决策。
该过程不仅展示了CRUK在资金决策中持续让患者/公众参与的承诺，还为这些参与者提供了一个全面了解相关流程的机会，以便为该慈善机构未来的患者/公众参与提供信息，同时影响正在审查的个别研究的决策。
