Department of Neuromedicine, Peking University People's Hospital, 11 Xizhimen South Street, Beijing, China.
Ital J Pediatr. 2021 Jun 2;47(1):124. doi: 10.1186/s13052-021-01068-7.
This study aimed to provide a summary of the measures to assess narcoleptic symptoms or complications in pediatric narcolepsy patients.
We searched in the National Center for Biotechnology Information (NCBI) for measures of narcoleptic symptoms for pediatric patients. Further review was conducted if relevant questionnaires or information were mentioned.
There were only two narcolepsy-specific questionnaires, the narcolepsy severity scale and Ullanlinna Narcolepsy Scale, neither of them was developed or validated in the pediatric population. For cataplexy, all the measures were study-specific diaries and were not validated questionnaires. For excessive daytime sleepiness, the Epworth Sleepiness Scale was most frequently used to measure excessive daytime sleepiness in children. For nighttime sleep, the Children's Sleep Habits Questionnaire was most frequently used. For depression, the Children Depression Inventory was the most frequently used. For attention-deficit/hyperactivity disorder, the Child Behavior Checklist was the most frequently used. For quality of life, KIDSCREEN was most frequently used.
At present, there is a lack of disease-specific and validated questionnaires for pediatric narcoleptic patients. This need can be met by modifying and adjusting the existing adult questionnaires and developing new questionnaires for pediatric narcoleptic patients.
本研究旨在总结评估儿童嗜睡症患者嗜睡症状或并发症的措施。
我们在国家生物技术信息中心（NCBI）中搜索了针对儿科患者的嗜睡症状的评估措施。如果提到了相关问卷或信息，则进一步进行了审查。
仅有两种专门用于嗜睡症的问卷，即嗜睡严重程度量表和 Ullanlinna 嗜睡症量表，它们均未在儿科人群中开发或验证。对于猝倒，所有的评估措施都是特定于研究的日记，而不是经过验证的问卷。对于日间过度嗜睡，Epworth 嗜睡量表最常用于测量儿童的日间过度嗜睡。对于夜间睡眠，儿童睡眠习惯问卷最常用。对于抑郁，儿童抑郁量表是最常用的。对于注意力缺陷/多动障碍，儿童行为检查表是最常用的。对于生活质量，KIDSCREEN 最常用。
目前，缺乏针对儿童嗜睡症患者的特定疾病和经过验证的问卷。这一需求可以通过修改和调整现有的成人问卷以及为儿科嗜睡症患者开发新的问卷来满足。
