Disability and Health Unit, the Melbourne School of Population and Global Health, The University of Melbourne, 207 Bouverie Street, Carlton 3065, Victoria, Australia.
Disability and Health Unit, the Melbourne School of Population and Global Health, The University of Melbourne, 207 Bouverie Street, Carlton 3065, Victoria, Australia.
Mult Scler Relat Disord. 2021 Aug;53:103042. doi: 10.1016/j.msard.2021.103042. Epub 2021 May 25.
Crises and disasters disproportionally impact people with chronic health conditions such as multiple sclerosis (MS).
To assess the impact of the COVID-19 pandemic and the Australian Black Summer Bushfires on health behaviours in people with MS.
People with MS, carers, healthcare and advocacy professionals were recruited online between May-July 2020 for an online survey and telephone interviews.
Survey items relating to health behaviours were completed by 113 people with MS, and 18 people with MS, 4 MS advocates, 5 healthcare professionals, and 2 carers were interviewed. The bushfires affected 34.5% and the pandemic affected 74.3% of survey participants with MS. The pandemic and bushfires caused a decrease in physical activity in 53.8% and 55.3% of participants respectively, as well as increases in unhealthy eating (43.6% and 24.3% respectively) and alcohol consumption (35.4% and 10.5% respectively), and a decrease in typical sleeping patterns (40.5% and 39.5% respectively). Conversely, 27.5% of participants reported an increase in physical activity during the pandemic. Interview data detailed the circumstances and motivations for changes in health behaviours, as well as consequences, including reduced mobility, fitness, mood disturbances, and weight gain.
There is a need to increase support and health promotion for people with MS to maintain or initiate positive health behaviours, especially in times of adversity.
危机和灾害对患有慢性健康状况（如多发性硬化症）的人群造成了不成比例的影响。
评估 COVID-19 大流行和澳大利亚黑色夏季丛林大火对多发性硬化症患者健康行为的影响。
2020 年 5 月至 7 月期间，通过在线方式招募多发性硬化症患者、照顾者、医疗保健和宣传专业人员，进行在线调查和电话访谈。
共有 113 名多发性硬化症患者完成了与健康行为相关的调查项目，对 18 名多发性硬化症患者、4 名多发性硬化症宣传者、5 名医疗保健专业人员和 2 名照顾者进行了访谈。丛林大火影响了 34.5%的调查参与者，大流行则影响了 74.3%的多发性硬化症患者。大流行和丛林大火分别导致 53.8%和 55.3%的参与者减少了身体活动，分别有 43.6%和 24.3%的参与者增加了不健康的饮食，分别有 35.4%和 10.5%的参与者增加了饮酒量，分别有 40.5%和 39.5%的参与者改变了典型的睡眠模式。相反，27.5%的参与者报告在大流行期间增加了身体活动。访谈数据详细说明了健康行为改变的情况和动机，以及后果，包括活动能力降低、健康状况恶化、情绪紊乱和体重增加。
需要增加对多发性硬化症患者的支持和健康促进，以维持或开始积极的健康行为，特别是在困难时期。
