Ubeda Tikkanen Ana, Berry Emily, LeCount Erin, Engstler Katherine, Sager Meredith, Esteso Paul
Department of Pediatric Rehabilitation, Spaulding Rehabilitation Hospital, Boston, MA, United States.
Department of Cardiac Surgery, Boston Children's Hospital, Boston, MA, United States.
Front Pediatr. 2021 May 19;9:674156. doi: 10.3389/fped.2021.674156. eCollection 2021.
Survival of pediatric patients with heart failure has improved due to medical and surgical advances over the past decades. The complexity of pediatric heart transplant patients has increased as medical and surgical management for patients with congenital heart disease continues to improve. Quality of life in patients with heart failure and transplant might be affected by the impact on functional status that heart failure, heart failure complications or treatment might have. Functional areas affected might be motor, exercise capacity, feeding, speech and/or cognition. The goal of rehabilitation is to enhance and restore functional ability and quality of life to those with physical impairments or disabilities. Some of these rehabilitation interventions such as exercise training have been extensively evaluated in adults with heart failure. Literature in the pediatric population is limited yet promising. The use of additional rehabilitation interventions geared toward specific complications experienced by patients with heart failure or heart transplant are potentially helpful. The use of individualized multidisciplinary rehabilitation program that includes medical management, rehabilitation equipment and the use of physical, occupational, speech and feeding therapies can help improve the quality of life of patients with heart failure and transplant.
在过去几十年里,由于医学和外科手术的进步,小儿心力衰竭患者的生存率有所提高。随着先天性心脏病患者的内科和外科治疗持续改善,小儿心脏移植患者的病情复杂性增加。心力衰竭和移植患者的生活质量可能会受到心力衰竭、心力衰竭并发症或治疗对功能状态的影响。可能受影响的功能领域包括运动、运动能力、喂养、言语和/或认知。康复的目标是提高和恢复身体有损伤或残疾者的功能能力和生活质量。其中一些康复干预措施,如运动训练,已在成年心力衰竭患者中得到广泛评估。儿科人群中的相关文献有限,但前景乐观。针对心力衰竭或心脏移植患者所经历的特定并发症采用额外的康复干预措施可能会有所帮助。使用包括医疗管理、康复设备以及物理治疗、职业治疗、言语治疗和喂养治疗的个性化多学科康复计划,有助于改善心力衰竭和移植患者的生活质量。