Department of Respiratory and Sleep Medicine, Liverpool Hospital, Sydney, NSW, Australia.
South Western Sydney Clinical School, University of New South Wales (UNSW), Sydney, NSW, Australia.
PLoS One. 2021 Jun 7;16(6):e0252915. doi: 10.1371/journal.pone.0252915. eCollection 2021.
Little is known about the treatment burden experienced by patients with obstructive sleep apnoea (OSA) who use continuous positive airway pressure (CPAP) therapy.
18 patients (33.3% males, mean age 59.7±11.8 years) with OSA who use CPAP therapy were interviewed.
Patients treated with CPAP for OSA at a tertiary hospital outpatient clinic in Sydney, Australia, were invited to participate in an interview in person or via phone. Semi-structured interviews were used to explore the treatment burden associated with using CPAP. The interviews were recorded, transcribed, and analysed using NVivo 12 qualitative analysis software.
Four categories of OSA-specific treatment burden were identified: healthcare tasks, consequences of healthcare tasks, exacerbating and alleviating factors of treatment burden. Participants reported a significant burden associated with using CPAP, independently of how frequently they used their device. Common sources of their treatment burden included attending healthcare appointments, the financial cost of treatment, lifestyle changes, treatment-related side effects and general discomfort.
This study demonstrated that there is a significant treatment burden associated with the use of CPAP, and that treatment non-adherence is not the only consequence of treatment burden. Other consequences include relationship burden, stigma and financial burden. It is important for physicians to identify other negative impacts of treatment burden in order to optimise the patient experience.
对于使用持续气道正压通气(CPAP)治疗的阻塞性睡眠呼吸暂停(OSA)患者所经历的治疗负担知之甚少。
18 名(33.3%为男性,平均年龄 59.7±11.8 岁)在澳大利亚悉尼一家三级医院门诊使用 CPAP 治疗 OSA 的患者接受了采访。
邀请在澳大利亚悉尼一家三级医院门诊接受 CPAP 治疗 OSA 的患者接受当面或电话采访。采用半结构式访谈,探讨与使用 CPAP 相关的治疗负担。对访谈进行录音、转录,并使用 NVivo 12 定性分析软件进行分析。
确定了 OSA 特定治疗负担的四个类别:医疗保健任务、医疗保健任务的后果、治疗负担的加重和缓解因素。参与者报告了与使用 CPAP 相关的显著负担,无论他们使用设备的频率如何。治疗负担的常见来源包括就医、治疗的经济成本、生活方式的改变、与治疗相关的副作用和一般不适。
这项研究表明,使用 CPAP 会带来显著的治疗负担,治疗不依从不仅仅是治疗负担的后果。其他后果包括关系负担、耻辱感和经济负担。医生识别治疗负担的其他负面影响对于优化患者体验非常重要。