IRCCS Fondazione Don Carlo Gnocchi, Unit of Neuromotor Rehabilitation, Multiple Sclerosis Center, Milan, Italy.
Department of Biosciences, Università Degli Studi Di Milano, Milano, Italy.
Psychol Health Med. 2022 Feb;27(2):428-435. doi: 10.1080/13548506.2021.1939072. Epub 2021 Jun 15.
E-health applications can support continuing care for persons with chronic diseases such as multiple sclerosis (MS). We have developed a web-based mobile app called VIOLA to be used at home by persons with MS (pwMS) who previously participated in an innovative multidisciplinary rehab program. The purpose of VIOLA is to reinforce what participants have learned about a healthy lifestyle and to keep them motivated to adhere to rehabilitation programs. As the outbreak of the Covid-19 pandemic has severely curtailed pwMS contact with their usual health providers, we quickly updated VIOLA to grant continuity of care to our home-bound patients.By monitoring pwMS subscriptions to individual modules, we found a definite increase after the national lockdown was declared. Subscribers rated the app very positively.Encouraged by the positive feedbacks, we are planning to extend the access to our app also to pwMS with no prior specific learning experience. This would limit the psychophysical consequences of the lockdown. Furthermore, VIOLA could be effective in maintaining a proper lifestyle, contributing to improve the quality of life of pwMS.VIOLA has the potential of increasing the adherence of pwMS to the rehabilitation confirming that digital communication tools are a valuable solution for those home-bound.].
电子健康应用程序可以为患有慢性疾病(如多发性硬化症)的人提供持续护理。我们开发了一个名为 VIOLA 的基于网络的移动应用程序,供以前参加过创新多学科康复计划的多发性硬化症患者在家中使用。VIOLA 的目的是强化参与者关于健康生活方式的知识,并保持他们坚持康复计划的动力。由于新冠疫情的爆发严重限制了多发性硬化症患者与他们通常的医疗服务提供者的接触,我们迅速更新了 VIOLA,以便为我们的居家患者提供连续性护理。通过监测多发性硬化症患者对各个模块的订阅情况,我们发现国家封锁宣布后,订阅量明显增加。用户对该应用程序的评价非常积极。在积极反馈的鼓舞下,我们计划将应用程序的访问权限也扩展到没有特定学习经验的多发性硬化症患者。这将限制封锁带来的心理和生理后果。此外,VIOLA 可以有效地维持适当的生活方式,有助于改善多发性硬化症患者的生活质量。VIOLA 有可能提高多发性硬化症患者对康复的依从性,证实了数字通信工具对于那些居家患者是一种有价值的解决方案。