拉丁美洲多发性硬化症患者在 COVID-19 大流行期间的医疗保健变化。
Changes on the health care of people with multiple sclerosis from Latin America during the COVID-19 pandemic.
机构信息
Hospital Británico De Buenos Aires, Área de Enfermedades Desmielinizantes, Perdriel 74, Buenos Aires 1280, Argentina; Esclerosis Múltiple Argentina (EMA), Uriarte 1465, Buenos Aires 1414, Argentina.
Esclerosis Múltiple Argentina (EMA), Uriarte 1465, Buenos Aires 1414, Argentina.
出版信息
Mult Scler Relat Disord. 2021 Sep;54:103120. doi: 10.1016/j.msard.2021.103120. Epub 2021 Jun 30.
BACKGROUND
The COVID-19 pandemic has resulted in uncertain access to medical treatment for people with multiple sclerosis (pwMS) all over the world. However, there is no data regarding its impact on access to health care of pwMS from Latin America.
OBJECTIVES
We investigated and described changes in health care delivery for pwMS from Latin America during the COVID-19 pandemic.
METHODS
PwMS from 18 patient organizations of the region completed a web-based survey hosted from May to October 2020.
RESULTS
A total of 602 pwMS completed the questionnaire. Changes in disease-modifying therapies (DMTs) use: 6.7% of pwMS on continuous DMTs claimed to stopped them; 14.1% of those on infusion therapies declared to postpone their dosing; 68.8% declared delaying the initiation of a DMT. Disruptions in accessing rehabilitation services were reported by 65.7%. Changes in laboratory and MRI monitoring were reported by 30% and 33%, respectively. In a multivariable-adjusted logistic regression model, changes in laboratory monitoring were significantly associated with increased odds of postponing MRI monitoring (OR 4.09 CI95% 2.79-6.00, p < 0.001).
CONCLUSIONS
The COVID-19 pandemic has disrupted all aspects of the routine care for pwMS from Latin America. Consequences are yet to be determined.
背景
COVID-19 大流行导致全世界多发性硬化症（pwMS）患者的医疗服务获取变得不确定。然而，关于 COVID-19 对拉丁美洲 pwMS 获得医疗保健的影响，尚无相关数据。
目的
我们调查并描述了 COVID-19 大流行期间拉丁美洲 pwMS 的医疗服务提供的变化。
方法
该地区 18 个患者组织的 pwMS 完成了一项于 2020 年 5 月至 10 月期间在网上进行的调查。
结果
共有 602 名 pwMS 完成了问卷。疾病修正治疗（DMT）使用的变化：6.7%的连续 DMT 使用者声称已停止使用；14.1%的输注疗法使用者宣布推迟剂量；68.8%的人表示推迟了 DMT 的开始。65.7%的人报告说在获得康复服务方面存在障碍。分别有 30%和 33%的人报告说实验室和 MRI 监测发生了变化。在多变量调整的逻辑回归模型中，实验室监测的变化与推迟 MRI 监测的几率增加显著相关（OR 4.09 CI95% 2.79-6.00，p<0.001）。
结论
COVID-19 大流行扰乱了拉丁美洲所有 pwMS 的常规护理。其后果还有待确定。
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