95522Deakin University, Australia.
St Vincent's Hospital Melbourne, Australia.
Health Inf Manag. 2023 Jan;52(1):37-40. doi: 10.1177/18333583211019764. Epub 2021 Jun 16.
Australia's national electronic health record (EHR), ), raises concerns about information privacy and the presumption of consent to participation. In contrast to the "opt-out" framework for participation, consumers must "opt-in" to obtain additional privacy features to protect their health information on . We review ethical considerations relating to opt-in and opt-out frameworks in the context of EHRs, discussing potential reasons why consent for additional safeguards is not currently presumed. Exploring the implications of recent amendments to strengthen consumer privacy, we present recommendations to promote equity in health information security for all Australians using .
澳大利亚的国家电子健康记录(EHR)引发了人们对信息隐私和参与默认同意的担忧。与参与的“选择退出”框架不同,消费者必须“选择加入”以获得额外的隐私功能,以保护他们在 上的健康信息。我们审查了与 EHR 相关的选择加入和选择退出框架的伦理考虑因素,讨论了为什么目前没有默认同意额外保障措施的潜在原因。在探讨最近的修正案对加强消费者隐私的影响时,我们提出了使用 来促进所有澳大利亚人健康信息安全公平性的建议。