Meredith Jacqueline, McCarthy Shaun, Hemsley Bronwyn
Sessional Academic and Research Associate, University of Newcastle.
Judge's Associate, Supreme Court of Victoria.
J Law Med. 2018 Jul;25(4):1042-1055.
This article explores the legal and ethical issues surrounding the production, storage, retrieval and use of electronic personal health records of children aged 14 years and over. Specifically, we explore: (1) the capacity, consent and competence issues; (2) privacy and confidentiality concerns; (3) the tension between a child's right to autonomy and his or her parent's or guardian's rights and responsibilities; and (4) outline implications of this for the implementation of Australia's My Health Record system, particularly for children with communication disability who are high users of health systems and have high health information exchange needs.
本文探讨了围绕14岁及以上儿童电子个人健康记录的生成、存储、检索和使用的法律与伦理问题。具体而言，我们探讨了：（1）行为能力、同意和胜任能力问题；（2）隐私和保密问题；（3）儿童的自主权与其父母或监护人的权利和责任之间的矛盾；以及（4）概述这对澳大利亚“我的健康记录”系统实施的影响，特别是对于那些频繁使用医疗系统且有高健康信息交换需求的沟通障碍儿童。
