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利用生态有效性模型来调整拉丁裔群体中自闭症谱系障碍儿童的家长参与式干预措施:概念综述。

Using the Ecological Validity Model to adapt parent-involved interventions for children with Autism Spectrum Disorder in the Latinx community: A conceptual review.

机构信息

Hearing and Speech Sciences Department, Vanderbilt University, United States.

Department of Special Education, Vanderbilt University, United States.

出版信息

Res Dev Disabil. 2021 Sep;116:104012. doi: 10.1016/j.ridd.2021.104012. Epub 2021 Jun 18.

DOI:10.1016/j.ridd.2021.104012
PMID:34153646
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8349824/
Abstract

BACKGROUND

Parent involvement in interventions for children with Autism Spectrum Disorder (ASD) provides parents with education about ASD diagnosis and treatment, improves parent-child interactions, and offers access to cost-effective resources. The Latinx population represents the fastest growing minority population in the United States and a growing percentage of children seeking ASD intervention services.

AIMS

Identify factors that impact Latinx parent involvement in interventions for children with ASD as an example of cultural considerations for diverse families and communities.

METHODS AND PROCEDURES

In this conceptual overview, we synthesize literature on cultural considerations for intervention design/adaptation for Latinx families and parent involvement in interventions for children with ASD through the lens of the Ecological Validity Model.

OUTCOMES AND RESULTS

Frameworks such as the Ecological Validity Model can be used when creating or adapting interventions for specific cultural groups. Parent-involved interventions for children with ASD in the Latinx community should consider language of intervention delivery, family make-up, community support, disability knowledge of the family, the therapeutic alliance, and methods of implementation.

CONCLUSIONS AND IMPLICATIONS

Incorporating cultural components into parent-involved interventions will best support intervention implementation and dissemination in diverse communities. Research is needed into the process and outcomes of intervention programs in order to increase understanding of how specific cultural dimensions impact participation in and efficacy of parent-involved interventions for Latinx families of children with ASD.

摘要

背景

家长参与自闭症谱系障碍(ASD)儿童的干预措施为家长提供了 ASD 诊断和治疗方面的教育,改善了亲子互动,并提供了具有成本效益的资源。拉丁裔人口是美国增长最快的少数族裔群体,寻求 ASD 干预服务的儿童比例也在不断增加。

目的

确定影响拉丁裔家长参与 ASD 儿童干预措施的因素,以此为例探讨多元家庭和社区的文化考虑因素。

方法和程序

在这个概念概述中,我们通过生态有效性模型的视角,综合了有关拉丁裔家庭干预设计/适应的文化考虑因素以及 ASD 儿童干预中家长参与的文献。

结果和结论

在为特定文化群体创建或改编干预措施时,可以使用生态有效性模型等框架。拉丁裔社区中针对 ASD 儿童的家长参与式干预措施应考虑干预提供的语言、家庭构成、社区支持、家庭对残疾的了解、治疗联盟以及实施方法。

结论和影响

将文化因素纳入家长参与式干预措施将最有效地支持多元化社区中的干预实施和推广。需要研究干预计划的过程和结果,以增加对特定文化维度如何影响 ASD 儿童的拉丁裔家庭参与和家长参与式干预措施效果的理解。

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Using stakeholder perspectives to guide systematic adaptation of an autism mental health intervention for Latinx families: A qualitative study.利用利益相关者的视角指导自闭症心理健康干预措施在拉丁裔家庭中的系统适应:一项定性研究。
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Implementing an intervention to address challenging behaviors for autism spectrum disorder in publicly-funded mental health services: Therapist and parent perceptions of delivery with Latinx families.在公共资助的心理健康服务中实施干预措施以解决自闭症谱系障碍的挑战性行为:拉丁裔家庭对治疗师和家长提供服务的看法。
Cultur Divers Ethnic Minor Psychol. 2018 Oct;24(4):552-563. doi: 10.1037/cdp0000215. Epub 2018 Jul 19.
8
Telehealth and autism: A systematic search and review of the literature.远程医疗与自闭症:文献的系统检索与综述
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Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2014.8 岁儿童自闭症谱系障碍患病率 - 自闭症及发育障碍监测网,美国 11 个监测点,2014 年。
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