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重新审视一项针对美国拉丁裔父母的父母教育计划的 RCT 研究:治疗效果是否随着时间的推移而保持?

Revisiting an RCT study of a parent education program for Latinx parents in the United States: Are treatment effects maintained over time?

机构信息

The University of Texas at Austin, USA.

Arizona State University, USA.

出版信息

Autism. 2022 Feb;26(2):499-512. doi: 10.1177/13623613211033108. Epub 2021 Jul 28.

DOI:10.1177/13623613211033108
PMID:34320853
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8795242/
Abstract

We conducted a follow-up investigation of a two-site randomized controlled trial in the United States. We examined whether the treatment effects in a culturally tailored parent education program for Latinx families of children with autism spectrum disorder were maintained over time. Using linear mixed models, we compared differences in parent and child outcomes across three timepoints: baseline, 4 months after baseline (Time 2), and 8 months after baseline (T3). Parent outcomes included family empowerment, self-reported confidence in, and frequency of using evidence-based strategies. Child outcomes included parent-reported challenging behaviors, social communication impairments, and the number of services received. Participants were 109 Latina mothers (intervention = 54, control = 55) of children with autism spectrum disorder. After intervention at both Time 2 and Time 3 in both sites, mothers in the intervention groups reported significantly greater confidence in and frequency of using evidence-based strategies, and that their child received significantly more services. We also found that there were treatment differences across the two study sites in several outcomes. The intervention for Latinx parents of children with autism spectrum disorder was efficacious and could be maintained, and that site-specific policy and service differences may need to be examined in future research to inform dissemination and implementation.

摘要

我们对美国的一项两站点随机对照试验进行了随访调查。我们考察了针对自闭症谱系障碍儿童的拉丁裔美国家庭的文化适应型家长教育计划的治疗效果是否随着时间的推移而保持。我们使用线性混合模型,比较了三个时间点(基线、基线后 4 个月(时间 2)和基线后 8 个月(T3))的家长和儿童结果的差异。家长结果包括家庭赋权、自我报告的信心和使用循证策略的频率。儿童结果包括父母报告的挑战行为、社交沟通障碍以及所接受的服务数量。参与者是 109 名拉丁裔母亲(干预组 54 名,对照组 55 名)的自闭症谱系障碍儿童。在两个地点的干预时间 2 和时间 3 之后,干预组的母亲报告说,他们对循证策略的信心和使用频率显著提高,而且他们的孩子接受的服务也显著增加。我们还发现,在几个结果方面,两个研究地点存在治疗差异。针对自闭症谱系障碍儿童的拉丁裔父母的干预措施是有效的,可以维持下去,未来的研究可能需要检查特定地点的政策和服务差异,以为推广和实施提供信息。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1632/8795242/fa68af367ee2/nihms-1720467-f0002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1632/8795242/2a52845797be/nihms-1720467-f0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1632/8795242/fa68af367ee2/nihms-1720467-f0002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1632/8795242/2a52845797be/nihms-1720467-f0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1632/8795242/fa68af367ee2/nihms-1720467-f0002.jpg

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本文引用的文献

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JAMA Pediatr. 2021 Mar 1;175(3):243-250. doi: 10.1001/jamapediatrics.2020.5218.
2
A Study of the Families Included in Receiving Better Special Education Services (FIRME) Project for Latinx Families of Children with Autism and Developmental Disabilities.拉丁裔家庭自闭症和发育障碍儿童接受更好特殊教育服务(FIRME)项目家庭研究。
J Autism Dev Disord. 2021 Oct;51(10):3662-3676. doi: 10.1007/s10803-020-04827-3. Epub 2021 Jan 4.
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Disparities in Service Use Among Children With Autism: A Systematic Review.
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Pediatrics. 2020 Apr;145(Suppl 1):S35-S46. doi: 10.1542/peds.2019-1895G.
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Providers' Guidance to Parents and Service Use for Latino Children With Developmental Disabilities.提供者为有发育障碍的拉丁裔儿童的家长提供指导和服务利用。
Am J Intellect Dev Disabil. 2020 Jan;125(1):64-75. doi: 10.1352/1944-7558-125.1.64.
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It's time for a change!: The appreciative inquiry/bootcamp translation to address disparities in the Latino community with autism spectrum disorders.是时候做出改变了!:运用欣赏式探询/训练营模式,解决拉丁裔群体自闭症谱系障碍中的差异问题。
Cultur Divers Ethnic Minor Psychol. 2019 Jan;25(1):113-122. doi: 10.1037/cdp0000242.
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