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Real-World Adherence Among Adults With Cystic Fibrosis Is Low: A Retrospective Analysis of the CFHealthHub Digital Learning Health System.

作者信息

Hoo Zhe Hui, Totton Nikki, Waterhouse Simon, Lewis Jen, Girling Carla, Bradburn Michael, Arden Madelynne A, Whelan Pauline, Ainsworth John, Dawson Sophie, Millward Sarah, Barnett Kate, Dewar Jane, Barr Helen L, Saini Gauri, Shepherd Elizabeth, Carroll Mary, Allenby Mark I, Daniels Thomas V, Nightingale Julia A, Lowther Michelle, Carolan Charlotte, Clarke Charlotte, Szczepanski Rachel, Hutchings Marlene, Edenborough Frank P, Curley Rachael, Wildman Martin J

机构信息

School of Health and Related Research, University of Sheffield, Sheffield, UK; Sheffield Adult Cystic Fibrosis Centre, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK.

School of Health and Related Research, University of Sheffield, Sheffield, UK.

出版信息

Chest. 2021 Dec;160(6):2061-2065. doi: 10.1016/j.chest.2021.06.039. Epub 2021 Jun 26.

DOI:10.1016/j.chest.2021.06.039
PMID:34186037
Abstract
摘要

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引用本文的文献

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Eur Respir Rev. 2024 Aug 14;33(173). doi: 10.1183/16000617.0060-2024. Print 2024 Jul.
2
Nebuliser systems for drug delivery in cystic fibrosis.雾化器系统在囊性纤维化中的药物输送。
Cochrane Database Syst Rev. 2023 Nov 9;11(11):CD007639. doi: 10.1002/14651858.CD007639.pub3.
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Digital technology for early identification of exacerbations in people with cystic fibrosis.数字技术用于早期识别囊性纤维化患者的恶化情况。
Cochrane Database Syst Rev. 2023 Apr 14;4(4):CD014606. doi: 10.1002/14651858.CD014606.pub2.
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Psychological interventions for improving adherence to inhaled therapies in people with cystic fibrosis.心理干预对改善囊性纤维化患者吸入治疗依从性的作用。
Cochrane Database Syst Rev. 2023 Mar 29;3(3):CD013766. doi: 10.1002/14651858.CD013766.pub2.
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The CFHealthHub Learning Health System: Using Real-Time Adherence Data to Support a Community of Practice to Deliver Continuous Improvement in an Archetypal Long-Term Condition.囊性纤维化健康中心学习型健康系统：利用实时依从性数据支持实践社区，以在典型的长期病症中实现持续改进。
Healthcare (Basel). 2022 Dec 21;11(1):20. doi: 10.3390/healthcare11010020.
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Impact of the COVID-19 pandemic and associated lockdown measures on the management, health, and behavior of the cystic fibrosis population in France during 2020 (MUCONFIN).2020 年 COVID-19 大流行及相关封锁措施对法国囊性纤维化人群的管理、健康和行为的影响（MUCONFIN）。
Front Public Health. 2022 Nov 14;10:978627. doi: 10.3389/fpubh.2022.978627. eCollection 2022.
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Modelling Successful Self-Management in Adults With Cystic Fibrosis: Vicarious Self-Efficacy From Videos of 'People Like Me'.对成年囊性纤维化患者成功自我管理的建模：来自“像我这样的人”视频的替代性自我效能感
Cureus. 2022 Jul 2;14(7):e26511. doi: 10.7759/cureus.26511. eCollection 2022 Jul.
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Self-management intervention to reduce pulmonary exacerbations by supporting treatment adherence in adults with cystic fibrosis: a randomised controlled trial.自我管理干预通过支持治疗依从性来减少成人囊性纤维化患者的肺部恶化：一项随机对照试验。
Thorax. 2022 May;77(5):461-469. doi: 10.1136/thoraxjnl-2021-217594. Epub 2021 Sep 23.