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对成年囊性纤维化患者成功自我管理的建模:来自“像我这样的人”视频的替代性自我效能感

Modelling Successful Self-Management in Adults With Cystic Fibrosis: Vicarious Self-Efficacy From Videos of 'People Like Me'.

作者信息

Hutchings Marlene, Kirkpatrick Susan, Arden Madelynne A, Drabble Sarah J, Maguire Chin, Cantrill Hannah, Whelan Pauline, Hoo Zhe H, Wildman Martin J

机构信息

Sheffield Adult Cystic Fibrosis Centre, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, GBR.

Health Experiences Research Group, University of Oxford, Oxford, GBR.

出版信息

Cureus. 2022 Jul 2;14(7):e26511. doi: 10.7759/cureus.26511. eCollection 2022 Jul.

Abstract

Background Self-efficacy is an important determinant of treatment adherence, and peer modelling of success can provide vicarious self-efficacy. A series of patient stories ('talking heads' videos) were developed with people with cystic fibrosis (CF) as part of the CFHealthHub multi-component adherence intervention, aiming to demonstrate success with daily therapy in 'people like me'. Methodology One-to-one semi-structured interviews exploring patients' experiences, barriers and facilitators of nebuliser adherence were audio and video-recorded between October 2015 and August 2016. Interview transcripts were reviewed to identify descriptions of problem-solving and sustained treatment success. Positive stories potentially providing vicarious descriptions of success were selected as video clips. Results In total, 14 adults with CF were recruited from five UK CF centres. Each participant contributed a median of five (interquartile range: 3-6) video clips, and a total of 57 unique clips were uploaded onto the CFHealthHub digital platform. Nine of those clips spanned two categories, hence, there were 66 clips across 16 categories. Conclusions The videos were well received though some adults were concerned that comparisons with peers might create anxiety by highlighting the possibility of future decline or current relative underperformance. It is important to sensitively support choice when providing resources aiming to increase vicarious self-efficacy. Our experience may guide the development of similar videos for people with other long-term conditions.

摘要

背景

自我效能感是治疗依从性的重要决定因素,而成功的同伴示范可以提供替代性自我效能感。作为CFHealthHub多成分依从性干预措施的一部分,开发了一系列由囊性纤维化(CF)患者讲述的患者故事(“访谈视频”),旨在展示“像我这样的人”在日常治疗中取得的成功。方法:2015年10月至2016年8月期间,对患者进行一对一的半结构化访谈,探讨他们在雾化器治疗依从性方面的经历、障碍和促进因素,并进行音频和视频记录。对访谈记录进行审查,以确定解决问题和持续治疗成功的描述。选择可能提供成功替代性描述的积极故事作为视频片段。结果:总共从英国五个CF中心招募了14名成年CF患者。每位参与者平均贡献了五个(四分位间距:3 - 6)视频片段,总共57个独特的片段被上传到CFHealthHub数字平台。其中九个片段跨越两个类别,因此,16个类别共有66个片段。结论:这些视频受到了好评,不过一些成年人担心与同龄人比较可能会因突出未来病情恶化或当前相对表现不佳的可能性而引发焦虑。在提供旨在提高替代性自我效能感的资源时,敏感地支持选择很重要。我们的经验可能会为患有其他长期疾病的人开发类似视频提供指导。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e511/9342668/b72f3bf9ad19/cureus-0014-00000026511-i01.jpg

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