King Abdulaziz University, Jeddah, Saudi Arabia.
King Abdulaziz University, Consultant of Pediatric Dentistry, Consultant of Orthodontics, Jeddah, Saudi Arabia.
Cleft Palate Craniofac J. 2022 Aug;59(8):1001-1009. doi: 10.1177/10556656211026536. Epub 2021 Jun 30.
To evaluate the barriers faced by patients with nonsyndromic orofacial clefts (NSOFC) throughout their treatment course in Saudi Arabia.
A cross-sectional study.
Eleven different governmental health care centers across Saudi Arabia. Patients: Records of pediatric patients with NSOFC.
A questionnaire with multiple validation stages was designed to assess the barriers in care of these patients through telephonic interviews with the parents or guardians of patients with NSOFC.
We identified 3 care-barrier-related factors: (1) geographic accessibility, (2) appointment availability and accessibility, and (3) scheduling-related barriers.
Overall, 240 participants of both sexes, with orofacial cleft of various types and with various demographic characteristics (residence, family monthly income, and caregiver level of education) were included. The highest mean score of care barriers was reported for scheduling-related barriers. Overall, 186 individuals reported sometimes/often not receiving the required medical care for the following reasons: scheduling difficulties (89%; 37.1%), prolonged waiting room time (40%; 16.7%), and transportation difficulties (36%; 15.0%). A linear regression showed that parents cited late appointments as the main reason for patients with NSOFC not receiving adequate medical care. Care-barrier factors were significantly related to gender ( = .035), patient age ( < .001), place of residency ( < .001), and caregiver's level of education ( = .015).
Gaps in the health care system directly related to common care barriers need to be addressed to ensure adequate care for patients with NSOFC.
评估沙特阿拉伯非综合征性口面裂（NSOFC）患者在整个治疗过程中所面临的障碍。
横断面研究。
沙特阿拉伯 11 个不同的政府医疗保健中心。
患有 NSOFC 的儿科患者的记录。
设计了一份带有多个验证阶段的问卷，通过对 NSOFC 患者的父母或监护人进行电话访谈，评估这些患者护理中的障碍。
我们确定了 3 个与护理障碍相关的因素：（1）地理可达性，（2）预约可用性和可及性，（3）与日程安排相关的障碍。
共有 240 名男女患者参与，他们患有各种类型的口面裂，具有各种人口统计学特征（居住地、家庭月收入和照顾者的教育水平）。日程安排相关障碍的护理障碍平均得分最高。总体而言，186 人报告有时/经常无法获得所需的医疗护理，原因如下：日程安排困难（89%；37.1%）、候诊室时间长（40%；16.7%）和交通困难（36%；15.0%）。线性回归显示，父母将预约时间晚列为 NSOFC 患者未接受充分医疗护理的主要原因。护理障碍因素与性别（ =.035）、患者年龄（ <.001）、居住地（ <.001）和照顾者的教育水平（ =.015）显著相关。
需要解决与常见护理障碍直接相关的医疗保健系统中的差距，以确保为 NSOFC 患者提供充分的护理。
