Department of Medicine, Vejle Hospital, Vejle, Denmark.
Chron Respir Dis. 2021 Jan-Dec;18:14799731211020322. doi: 10.1177/14799731211020322.
Understanding need for support and information among people with COPD is important for the delivery of patient-centred care. Especially regarding intimacy matters, many people wish to remain sexually active but may be struggling to find out how, as information and communication regarding sexual health is scarce. This is especially true when it comes to people with chronic obstructive pulmonary disease (COPD). The present review seeks to provide an overview of the role, contents and design of patient information leaflets (PILs) and discuss their application in sexual health communication for COPD. Based on the literature, a number of key points in the design of high-quality PILs are suggested, and important areas for the improvement of patients-clinician communication are highlighted. While PILs is a commonly used format to provide information in healthcare, other formats, e.g. video and podcasts, could be explored. Prioritizing the development of material to support communication in the future is necessary to address the needs of both patients and caregivers and to support clinicians in initiating conversations about sexual health and intimacy matters.
了解慢性阻塞性肺疾病（COPD）患者的支持和信息需求对于提供以患者为中心的护理至关重要。特别是在涉及到亲密问题时，许多人希望保持性活跃，但可能难以找到方法，因为关于性健康的信息和沟通非常匮乏。对于患有慢性阻塞性肺病的人来说，情况更是如此。本综述旨在概述患者信息传单（PIL）的作用、内容和设计，并讨论它们在 COPD 患者性健康沟通中的应用。基于文献，提出了设计高质量 PIL 的一些关键点，并强调了改善患者与临床医生沟通的重要领域。虽然 PIL 是在医疗保健中提供信息的常用格式，但可以探索其他格式，例如视频和播客。优先开发材料以支持未来的沟通对于满足患者和护理人员的需求以及支持临床医生就性健康和亲密问题展开对话是必要的。
