Prihartadi Aliya Syahreni, Impelliziere Licastro Giovanna, Pearson Mark, Johnson Miriam J, Luckett Tim, Swan Flavia
Wolfson Palliative Care Research Centre, Hull York Medical School, University of Hull, Hull, UK.
Faculty of Health, University of Technology Sydney, Sydney, New South Wales, Australia.
BMJ Support Palliat Care. 2023 Dec 7;13(e2):e244-e253. doi: 10.1136/bmjspcare-2021-002962.
Non-medical devices such as the handheld fan (fan), mobility aids (wheeled walkers with seats) and inspiratory muscle training (IMT) devices offer benefits for patient management of chronic breathlessness. We examined the published evidence regarding patient, carer and clinician use of the fan, mobility aids and IMT devices for chronic breathlessness management, and the potential barriers and facilitators to day-to-day use in a range of settings.
MEDLINE, Embase, Scopus, EBSCO and the Cochrane Database of Systematic Reviews were searched. Papers were imported into EndNote and Rayyan for review against a priori eligibility criteria. Outcome data relevant to use were extracted and categorised as potential barriers and facilitators, and a narrative synthesis exploring reasons for similarities and differences conducted.
Seven studies met the inclusion criteria (n=5 fan, n=2 mobility aids and n=0 IMT devices). All of the studies presented patient use of non-medical devices only. Patients found the fan easy to use at home. Mobility aids were used mainly for outdoor activities. Outdoor use for both devices were associated with embarrassment. Key barriers included: appearance; credibility; self-stigma; technical specifications. Common facilitators were ease of use, clinical benefit and feeling safe with the device.
The efforts of patients, carers and clinicians to adopt and use non-medical devices for the management of chronic breathlessness is impeded by lack of implementation research. Future research should improve knowledge of the barriers and facilitators to use. This would enhance understanding of how decision-making in patient-carer-clinician triads impacts on non-medical devices use for breathlessness management.
诸如手持风扇、移动辅助器具(带座椅的轮式助行器)和吸气肌训练(IMT)设备等非医疗设备,在慢性呼吸急促患者管理方面具有益处。我们研究了已发表的关于患者、护理人员和临床医生使用风扇、移动辅助器具和IMT设备进行慢性呼吸急促管理的证据,以及在一系列环境中日常使用的潜在障碍和促进因素。
检索了MEDLINE、Embase、Scopus、EBSCO和Cochrane系统评价数据库。将论文导入EndNote和Rayyan,根据预先设定的纳入标准进行评审。提取与使用相关的结果数据,并分类为潜在障碍和促进因素,进行叙述性综合分析以探讨异同的原因。
七项研究符合纳入标准(n = 5项关于风扇,n = 2项关于移动辅助器具,n = 0项关于IMT设备)。所有研究仅呈现了患者对非医疗设备的使用情况。患者发现风扇在家中易于使用。移动辅助器具主要用于户外活动。两种设备的户外使用都与尴尬感相关。关键障碍包括:外观;可信度;自我污名化;技术规格。常见的促进因素是易用性、临床益处以及使用设备时的安全感。
患者、护理人员和临床医生采用和使用非医疗设备来管理慢性呼吸急促的努力受到实施研究不足的阻碍。未来的研究应增进对使用障碍和促进因素的了解。这将加深对患者 - 护理人员 - 临床医生三元组中的决策如何影响非医疗设备用于呼吸急促管理的理解。