Rahman Anna N, Enguidanos Susan
Leonard Davis School of Gerontology, University of Southern California, Los Angeles, California, USA.
Palliat Med Rep. 2020 Apr 30;1(1):18-24. doi: 10.1089/pmr.2020.0022. eCollection 2020.
The hospice industry has expanded in recent years with limited oversight and few consumer-facing resources to assist consumers in selecting hospice agencies to care for their family members. To better understand the availability of consumer-facing hospice information and how hospices are evaluated by these websites, this study examined two websites with national reach-the Centers for Medicare and Medicaid Services' Hospice Compare (HC) website and Yelp.com. We described Yelp hospice ratings and caregiver-reported ratings on HC and compared conceptually related HC ratings to each other. We collected hospice ratings from Yelp and hospice- and caregiver-reported quality indicators (QIs) from HC for all California hospices. We conducted descriptive statistics for all variables and conducted chi-square to examine differences in proportions for categorical variables. We conducted Pearson's correlation coefficient () to test the strength of the association between the hospice-reported pain assessment QI and the caregiver-reported indicators on HC. Among our sample of 1040 California hospices, HC reported QIs for 200 (19.2%) hospices for the caregiver-reported QIs ranging to 448 (43.1%) hospices for the hospice-reported QIs. Just 236 hospices (22.7%) had a Yelp review. Hospice ratings on both Yelp and HC were fairly high. For-profit hospices were less likely to show HC QIs or to be rated on Yelp. Caregiver-reported HC ratings for pain and symptom management were significantly lower than conceptually related HC hospice-reported QIs. More research is needed to understand the lack of hospice representation on HC and investigate the usefulness of hospice-reported HC measures.
近年来，临终关怀行业不断扩张，但监管有限，面向消费者的资源匮乏，难以帮助消费者选择临终关怀机构来照顾其家庭成员。为了更好地了解面向消费者的临终关怀信息的可得性以及这些网站如何评估临终关怀机构，本研究考察了两个具有全国影响力的网站——医疗保险和医疗补助服务中心的临终关怀比较（HC）网站以及Yelp.com。我们描述了Yelp上的临终关怀评级以及护理人员在HC上报告的评级，并对概念相关的HC评级进行了相互比较。我们收集了Yelp上所有加利福尼亚州临终关怀机构的评级以及HC上临终关怀机构和护理人员报告的质量指标（QIs）。我们对所有变量进行了描述性统计，并进行卡方检验以检查分类变量比例的差异。我们进行了Pearson相关系数（）检验，以测试临终关怀机构报告的疼痛评估QI与护理人员在HC上报告的指标之间的关联强度。在我们抽取的1040家加利福尼亚州临终关怀机构样本中，HC报告了200家（19.2%）临终关怀机构的护理人员报告的QIs，以及448家（43.1%）临终关怀机构的临终关怀机构报告的QIs。只有236家临终关怀机构（22.7%）有Yelp评论。Yelp和HC上的临终关怀评级都相当高。营利性临终关怀机构显示HC QIs或在Yelp上获得评级的可能性较小。护理人员报告的HC疼痛和症状管理评级明显低于概念相关的HC临终关怀机构报告的QIs。需要更多研究来了解HC上临终关怀机构代表性不足的情况，并调查临终关怀机构报告的HC措施的有用性。
