Depner Rachel M, Grant Pei C, Byrwa David J, LaFever Sarah M, Kerr Christopher W, Tenzek Kelly E, LaValley Susan, Luczkiewicz Debra L, Wright Scott T, Levy Kathryn, AdvStat Msw
Department of Research, Hospice and Palliative Care Buffalo, Cheektowaga, New York, USA.
Department of Counseling, School and Educational Psychology, Department of Family Medicine, University at Buffalo, The State University of New York, Buffalo, New York, USA.
Palliat Med Rep. 2020 Jul 7;1(1):103-110. doi: 10.1089/pmr.2020.0037. eCollection 2020.
Research has established End-of-Life Dreams and Visions (ELDVs) as prevalent, meaningful valid experiences that may help patients cope with illness and approaching death. However, no inductive qualitative analysis has explored the phenomenology of ELDVs from the perspective of hospice homecare patients. The purpose of this study is to evaluate the content of ELDVs by using a rigorous qualitative approach. Five hundred forty-eight ELDVs were collected from weekly interviews of hospice homecare patients and analyzed by using Consensual Qualitative Research Methodology. Participants were enrolled in a county-wide hospice homecare program between January 2013-March 2015. The following domains emerged: (1) Interpersonal, (2) Affective Experience and Reflection, (3) Activities, and (4) Setting/Location. This study suggests that ELDV content may include a broader spectrum of experiences that reflect waking life than previously believed. Clinical implications suggest that it may be important for providers to engage with ELDVs, as they are psychologically significant experiences that may be a source of clinical insight.
研究已证实临终梦境与幻象(ELDVs)是普遍存在、有意义且有效的体验,可能有助于患者应对疾病和临近的死亡。然而,尚无归纳性定性分析从临终关怀居家护理患者的角度探究ELDVs的现象学。本研究的目的是运用严谨的定性方法评估ELDVs的内容。通过对临终关怀居家护理患者的每周访谈收集了548个ELDVs,并采用共识定性研究方法进行分析。参与者于2013年1月至2015年3月期间参加了一个全县范围的临终关怀居家护理项目。出现了以下几个领域:(1)人际方面,(2)情感体验与反思,(3)活动,以及(4)场景/地点。本研究表明,ELDV的内容可能包括比之前认为的更广泛的反映现实生活的体验。临床意义表明,医护人员参与ELDVs可能很重要,因为它们是具有心理意义的体验,可能是临床洞察的一个来源。