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临终关怀患者的临终之梦和幻象:定性研究的系统评价。

Hospice Patients' End-of-Life Dreams and Visions: A Systematic Review of Qualitative Studies.

机构信息

Psycho-Oncology Unit, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.

Clinical Trials and Statistics Unit, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.

出版信息

Am J Hosp Palliat Care. 2024 Jan;41(1):99-112. doi: 10.1177/10499091231163571. Epub 2023 Mar 22.

Abstract

When conscious, about 50% to 60% of hospice patients report a "visitation" by someone who is not there while they dream or are awake: a phenomenon known as End-of-Life Dreams and Visions (ELDVs). Since the dying process is frequently complicated by delirium, ELDVs risk being misidentified as such by professionals and caregivers. To observe these phenomena from patients' perspectives, we conducted a systematic review to aggregate and synthesize the findings from the qualitative studies about ELDVs of patients assisted in hospices to indicate future directions for research and care. MEDLINE/PubMed, Embase, CINAHL, PsycINFO, Scopus, and Web of Science databases were searched, yielding 293 documents after duplicates were removed. Six qualitative articles reporting on five unique studies conducted in hospice settings were included in the meta-synthesis. We generated three main categories: i) typologies of ELDVs reported, ii) emotional consequences, and iii) intersubjective meaning-making. The ELDVs reported were experiences that remained intimate and unsocialized and thus preventing participants from defining a shared sense in their relationships. Training healthcare professionals to recognize ELDVs and take advantage of them in the care relationship is desirable. We also encourage the patient's family members to listen and understand ELDVs when they occur actively. For caregivers to know how to interpret these phenomena may provide them with additional strategies for supporting, reassuring, and strengthening their relationships with their loved ones. The review allowed us to inform healthcare professionals and caregivers about how to help patients share their emotional and identity-related experiences and meaning-making in end-of-life.

摘要

当有意识时,大约 50%到 60%的临终关怀患者报告说,在他们做梦或清醒时,会有一个不在那里的人“来访”:这种现象被称为临终之梦和幻象 (ELDVs)。由于临终过程常常伴有谵妄,因此 ELDVs 有可能被专业人士和护理人员错误地识别为这种情况。为了从患者的角度观察这些现象,我们进行了系统评价,汇总和综合了关于临终关怀患者 ELDVs 的定性研究的发现,以指出未来的研究和护理方向。我们在 MEDLINE/PubMed、Embase、CINAHL、PsycINFO、Scopus 和 Web of Science 数据库中进行了搜索,在去除重复项后得到了 293 份文件。有六篇定性文章报告了在临终关怀环境中进行的五项独特研究,这些文章被纳入了元综合。我们生成了三个主要类别:i)报告的 ELDVs 的类型学,ii)情绪后果,和 iii)主体间意义建构。报告的 ELDVs 是那些仍然亲密和非社会化的体验,因此阻止参与者在他们的关系中定义共同的意义。培训医疗保健专业人员识别 ELDVs 并在护理关系中利用它们是可取的。我们还鼓励患者的家属在 ELDVs 发生时积极倾听和理解。护理人员知道如何解释这些现象可能为他们提供额外的策略,以支持、安慰和加强他们与亲人的关系。该综述使我们能够告知医疗保健专业人员和护理人员如何帮助患者在生命末期分享他们的情感和身份相关的体验以及意义建构。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4c26/10710003/95e60297d67b/10.1177_10499091231163571-fig1.jpg

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