Kochovska Slavica, Chang Sungwon, Morgan Deidre D, Ferreira Diana, Sidhu Manraaj, Saleh Moussa Rayan, Johnson Miriam J, Ekström Magnus, Currow David C
IMPACCT, Faculty of Health, University of Technology Sydney, Ultimo, New South Wales, Australia.
Australian national Palliative Care Clinical Studies Collaborative, Faculty of Health, University of Technology Sydney, Ultimo, New South Wales, Australia.
Palliat Med Rep. 2020 Aug 18;1(1):166-170. doi: 10.1089/pmr.2020.0083. eCollection 2020.
Chronic breathlessness is a prevalent disabling syndrome affecting many people for years. Identifying the impact of chronic breathlessness on people's activities in the general population is pivotal for designing symptom management strategies. This study aimed to evaluate the association between chronic breathlessness and activities respondents identify can no longer be undertaken ("activities forgone"). This population-based cross-sectional online survey used a market research company's database of 30,000 registrants for each sex, generating the planned sample size-3000 adults reflecting Australia's 2016 Census by sex, age group, state of residence, and rurality. The population of focus ( = 583) reported a modified Medical Research Council (mMRC) breathlessness scale ≥1 and experienced this breathlessness for ≥3 months. Activities forgone were categorized by mMRC using coding derived from the Dyspnea Management Questionnaire domains. Activities were classified as "higher/lower intensity" using Human Energy Expenditure scale. Respondents were male 50.3%; median age 50.0 (IQR 29.0); with 66% living in metropolitan areas; reporting 1749 activities forgone. For people with mMRC 1 ( = 533), 35% had not given up any activity, decreasing to 9% for mMRC 2 ( = 38) and 3% for mMRC 3-4 ( = 12). Intense sport (e.g., jogging and bike riding) was the top activity forgone: 42% (mMRC 1), 32% (mMRC 2), and 36% (mMRC 3-4). For respondents with mMRC 3-4, the next most prevalent activities forgone were "sexual activities" (14%), "lower intensity sports" (11%), and "other activities" (11%). People progressively reduce a wide range of activities because of their chronic breathlessness.
慢性呼吸急促是一种普遍存在的致残综合征，多年来影响着许多人。确定慢性呼吸急促对普通人群活动的影响对于设计症状管理策略至关重要。本研究旨在评估慢性呼吸急促与受访者认为无法再进行的活动（“放弃的活动”）之间的关联。这项基于人群的横断面在线调查使用了一家市场研究公司拥有的、按性别各有30000名注册者的数据库，生成了计划样本量——3000名成年人，这些成年人按性别、年龄组、居住州和城乡划分情况反映了澳大利亚2016年的人口普查数据。重点人群（n = 583）报告改良医学研究委员会（mMRC）呼吸急促量表评分≥1且这种呼吸急促持续时间≥3个月。放弃的活动根据mMRC使用从呼吸困难管理问卷领域得出的编码进行分类。活动使用人体能量消耗量表分为“高强度/低强度”。受访者中男性占50.3%；年龄中位数为50.0（四分位距29.0）；66%居住在大都市地区；报告有1749项放弃的活动。对于mMRC 为1的人群（n = 533），35%没有放弃任何活动，mMRC 为2的人群（n = 38）这一比例降至9%，mMRC 为3 - 4的人群（n = 12）则为3%。剧烈运动（如慢跑和骑自行车）是最常放弃的活动：mMRC 为1的人群中占42%，mMRC 为2的人群中占32%，mMRC 为3 - 4的人群中占36%。对于mMRC 为3 - 4的受访者来说，接下来最常放弃的活动是“性活动”（14%）、“低强度运动”（11%）和“其他活动”（11%）。由于慢性呼吸急促，人们逐渐减少了广泛的活动。
