《Tele-STELLA 方案：基于远程医疗的支持，以帮助照顾处于晚期阿尔茨海默病阶段的家庭》。
The Tele-STELLA protocol: Telehealth-based support for families living with later-stage Alzheimer's disease.
机构信息
Layton Aging and Alzheimer's Disease Center, Oregon Health & Science University, Portland, OR, USA.
School of Nursing, Oregon Health & Science University, Portland, OR, USA.
出版信息
J Adv Nurs. 2021 Oct;77(10):4254-4267. doi: 10.1111/jan.14980. Epub 2021 Jul 20.
AIMS
We aim to establish the feasibility and acceptability of the Tele-STELLA (Support via Telehealth: Living and Learning with Advancing Alzheimer's Disease and Related Dementias) intervention. We will also assess the efficacy of the intervention in reducing the frequency of behavioural symptoms of dementia as well as family Care Partner reactivity to the symptoms.
DESIGN
This is a multi-component, quasi-experimental study that focuses on facilitating effective management of behavioural symptoms that occur in the later stages of dementia.
METHODS
Family Care Partners (n = 124) for persons with Alzheimer's disease will participate in two 8-week videoconferencing components that address behavioural symptoms-in both the persons with Alzheimer's disease and their Care Partners. In the first component ('Nova'), Care Partners work with one nurse for an hour/week for 4 weeks, then they join a small group for another 4 weeks. In the second component ('Constellation'), Care Partners work in a larger group to hone skills and knit supportive relationships. Behavioural symptom frequency and Care Partner reactivity to the behaviours will be measured prior to, during and after the intervention. The study is funded by the United States National Institute on Aging (R01AG067546); funding was initiated as on February, 2021.
DISCUSSION
Tele-STELLA fills a gap in current videoconference-based psychoeducational interventions in that it offers real-time interaction with nurses and peers. The intervention was designed with feedback by pilot participants. This study will assess Tele-STELLA in its current, novel format; thus, preparing it for a larger, future randomized controlled trial.
IMPACT
Tele-STELLA addresses symptoms that occur in the later stages of dementia, providing families with tools to facilitate effective behavioural management. Because Tele-STELLA is implemented via videoconferencing, it targets Care Partners who face barriers to support, such as cost and transportation.
TRIAL REGISTRATION
This trial is registered with ClinicalTrials.gov (#NCT04627662).
目的
我们旨在确定远程 STELLEA（通过远程医疗提供支持：在阿尔茨海默病及相关痴呆症的进展中生活和学习）干预措施的可行性和可接受性。我们还将评估该干预措施在减少痴呆症行为症状的频率以及家庭护理伙伴对这些症状的反应方面的疗效。
设计
这是一项多组成部分的准实验研究，重点是促进对痴呆症后期出现的行为症状进行有效管理。
方法
阿尔茨海默病患者的家庭护理伙伴（n=124）将参加两个 8 周的视频会议组成部分，分别针对阿尔茨海默病患者及其护理伙伴的行为症状。在第一个组成部分（“新星”）中，护理伙伴每周与一名护士合作一小时，持续 4 周，然后他们加入一个小组再进行 4 周。在第二个组成部分（“星座”）中，护理伙伴在一个更大的小组中磨练技能并建立支持关系。在干预之前、期间和之后，将测量行为症状的频率和护理伙伴对这些行为的反应。该研究由美国国家老龄化研究所（R01AG067546）资助；该研究于 2021 年 2 月开始启动资金。
讨论
远程 STELLEA 填补了当前基于视频会议的心理教育干预措施的空白，因为它提供了与护士和同行的实时互动。该干预措施是在试点参与者的反馈基础上设计的。这项研究将以其当前的新颖形式评估远程 STELLEA；从而为未来更大规模的随机对照试验做好准备。
影响
远程 STELLEA 针对痴呆症后期出现的症状，为家庭提供了促进有效行为管理的工具。由于远程 STELLEA 通过视频会议实施，因此它针对的是面临支持障碍（如成本和交通）的护理伙伴。
试验注册
该试验在 ClinicalTrials.gov 注册（#NCT04627662）。
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