REDCap 联盟：构建软件平台合作伙伴的国际社区。
The REDCap consortium: Building an international community of software platform partners.
机构信息
Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, TN, USA; Department of Biomedical Engineering, Vanderbilt University, Nashville, TN, USA; Vanderbilt Institute for Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN, USA.
Vanderbilt Institute for Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, TN, USA.
出版信息
J Biomed Inform. 2019 Jul;95:103208. doi: 10.1016/j.jbi.2019.103208. Epub 2019 May 9.
Abstract
The Research Electronic Data Capture (REDCap) data management platform was developed in 2004 to address an institutional need at Vanderbilt University, then shared with a limited number of adopting sites beginning in 2006. Given bi-directional benefit in early sharing experiments, we created a broader consortium sharing and support model for any academic, non-profit, or government partner wishing to adopt the software. Our sharing framework and consortium-based support model have evolved over time along with the size of the consortium (currently more than 3200 REDCap partners across 128 countries). While the "REDCap Consortium" model represents only one example of how to build and disseminate a software platform, lessons learned from our approach may assist other research institutions seeking to build and disseminate innovative technologies.
摘要
研究电子数据捕获 (REDCap) 数据管理平台于 2004 年开发，旨在满足范德比尔特大学的机构需求，然后从 2006 年开始与有限数量的采用站点共享。鉴于早期共享实验中的双向收益，我们为任何希望采用该软件的学术、非营利或政府合作伙伴创建了一个更广泛的共享和支持联盟模型。我们的共享框架和基于联盟的支持模型随着联盟规模的扩大而不断发展（目前在 128 个国家拥有超过 3200 个 REDCap 合作伙伴）。虽然“REDCap 联盟”模型仅代表构建和传播软件平台的一种方式，但从我们的方法中吸取的经验教训可能有助于其他寻求构建和传播创新技术的研究机构。
相似文献
1
The REDCap consortium: Building an international community of software platform partners.REDCap 联盟：构建软件平台合作伙伴的国际社区。
J Biomed Inform. 2019 Jul;95:103208. doi: 10.1016/j.jbi.2019.103208. Epub 2019 May 9.
2
Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support.研究电子数据采集（REDCap）——一种用于提供转化研究信息学支持的元数据驱动方法和工作流程。
J Biomed Inform. 2009 Apr;42(2):377-81. doi: 10.1016/j.jbi.2008.08.010. Epub 2008 Sep 30.
3
A pragmatic method for transforming clinical research data from the research electronic data capture "REDCap" to Clinical Data Interchange Standards Consortium (CDISC) Study Data Tabulation Model (SDTM): Development and evaluation of REDCap2SDTM.一种将临床研究数据从研究电子数据采集系统（REDCap）转换为临床数据交换标准协会（CDISC）研究数据列表模型（SDTM）的实用方法：REDCap2SDTM的开发与评估
J Biomed Inform. 2017 Jun;70:65-76. doi: 10.1016/j.jbi.2017.05.003. Epub 2017 May 6.
4
The process of installing REDCap, a web based database supporting biomedical research: the first year.安装REDCap（一个支持生物医学研究的基于网络的数据库）的过程：第一年
Appl Clin Inform. 2014 Nov 19;5(4):916-29. doi: 10.4338/ACI-2014-06-CR-0054. eCollection 2014.
5
Utah's statewide informatics platform for translational and clinical science.犹他州用于转化医学与临床科学的全州信息学平台。
AMIA Annu Symp Proc. 2008 Nov 6:1114.
6
Procurement of shared data instruments for Research Electronic Data Capture (REDCap).研究电子数据捕获（REDCap）共享数据工具的采购。
J Biomed Inform. 2013 Apr;46(2):259-65. doi: 10.1016/j.jbi.2012.10.006. Epub 2012 Nov 10.
7
Electronic Data Capture System (REDCap) for Health Care Research and Training in a Resource-Constrained Environment: Technology Adoption Case Study.资源受限环境下用于医疗保健研究与培训的电子数据采集系统（REDCap）：技术采用案例研究
JMIR Med Inform. 2022 Aug 30;10(8):e33402. doi: 10.2196/33402.
8
The REDCap Mobile Application: a data collection platform for research in regions or situations with internet scarcity.REDCap移动应用程序：一个用于互联网稀缺地区或情况下研究的数据收集平台。
JAMIA Open. 2021 Sep 13;4(3):ooab078. doi: 10.1093/jamiaopen/ooab078. eCollection 2021 Jul.
9
MIRACUM: Medical Informatics in Research and Care in University Medicine.MIRACUM：大学医学研究与医疗中的医学信息学
Methods Inf Med. 2018 Jul;57(S 01):e82-e91. doi: 10.3414/ME17-02-0025. Epub 2018 Jul 17.
10
REDLetr: Workflow and tools to support the migration of legacy clinical data capture systems to REDCap.REDLetr：支持将传统临床数据采集系统迁移至REDCap的工作流程及工具。
Int J Med Inform. 2016 Sep;93:103-10. doi: 10.1016/j.ijmedinf.2016.06.015. Epub 2016 Jun 27.
引用本文的文献
1
Training Volume and Training Frequency Changes Associated with Boston Marathon Race Performance.与波士顿马拉松比赛成绩相关的训练量和训练频率变化
Sports Med. 2025 Sep 6. doi: 10.1007/s40279-025-02304-4.
2
A Cross-Sectional Study of Delayed Diagnosis Associated with Gender and Racial Identity in Multiple Sclerosis.一项关于多发性硬化症中与性别和种族身份相关的延迟诊断的横断面研究。
J Racial Ethn Health Disparities. 2025 Sep 5. doi: 10.1007/s40615-025-02611-6.
3
Acute isolation is associated with increased reward seeking and reward learning in human adolescents.急性隔离与人类青少年寻求奖励和奖励学习的增加有关。
Commun Psychol. 2025 Sep 5;3(1):135. doi: 10.1038/s44271-025-00306-6.
4
Southern European Prospective Investigation Into Childhood Cancer and Nutrition (EPICkids): Study design and protocol.南欧儿童癌症与营养前瞻性调查（EPICkids）：研究设计与方案
PLoS One. 2025 Sep 5;20(9):e0319110. doi: 10.1371/journal.pone.0319110. eCollection 2025.
5
Food Insecurity and Rural Child and Family Functioning.粮食不安全与农村儿童及家庭功能
JAMA Netw Open. 2025 Sep 2;8(9):e2530691. doi: 10.1001/jamanetworkopen.2025.30691.
6
Evaluation of a digital health platform for preventing stroke in the Australian community: Study protocol for a randomized controlled trial - Love Your Brain.澳大利亚社区预防中风数字健康平台的评估：一项随机对照试验——关爱你的大脑的研究方案
PLoS One. 2025 Sep 4;20(9):e0330868. doi: 10.1371/journal.pone.0330868. eCollection 2025.
7
Validation of plasma microRNAs as biomarkers in sepsis associated acute kidney injury upon first clinical presentation reveals limited diagnostic and prognostic performance.首次临床表现时，血浆微小RNA作为脓毒症相关急性肾损伤生物标志物的验证显示，其诊断和预后性能有限。
PLoS One. 2025 Sep 4;20(9):e0331442. doi: 10.1371/journal.pone.0331442. eCollection 2025.
8
Patient-reported outcomes and their associated factors at 1- and 2-year follow-up after lumbar spine surgery: a surgery registry study.腰椎手术后1年和2年随访时患者报告的结局及其相关因素：一项手术登记研究
Qual Life Res. 2025 Sep 3. doi: 10.1007/s11136-025-04049-z.
9
Accuracy of preferred language data in a multi-hospital electronic health record in Toronto, Canada.加拿大多伦多一家多医院电子健康记录中首选语言数据的准确性。
PLOS Digit Health. 2025 Sep 3;4(9):e0000999. doi: 10.1371/journal.pdig.0000999. eCollection 2025 Sep.
10
Assessing the burden of severe nausea and vomiting of pregnancy or hyperemesis gravidarum and the associated use and experiences of medication treatments: An Australian consumer survey.评估妊娠剧吐或妊娠剧吐的严重恶心和呕吐负担以及药物治疗的相关使用情况和体验：一项澳大利亚消费者调查。
PLoS One. 2025 Sep 3;20(9):e0329687. doi: 10.1371/journal.pone.0329687. eCollection 2025.
本文引用的文献
1
Eulogy for the clinical research center.临床研究中心颂词。
J Clin Invest. 2016 Jul 1;126(7):2388-91. doi: 10.1172/JCI88381. Epub 2016 Jun 6.
2
User Satisfaction With Telehealth: Study of Patients, Providers, and Coordinators.患者对远程医疗的满意度：患者、提供者和协调员的研究
Health Care Manag (Frederick). 2015 Oct-Dec;34(4):337-49. doi: 10.1097/HCM.0000000000000081.
3
A Randomized Trial of Phototherapy with Filtered Sunlight in African Neonates.一项在非洲新生儿中进行的日光过滤光疗随机试验。
N Engl J Med. 2015 Sep 17;373(12):1115-24. doi: 10.1056/NEJMoa1501074.
4
Leveraging Electronic Tablets and a Readily Available Data Capture Platform to Assess Chronic Pain in Children: The PROBE system.利用电子平板电脑和一个现成的数据采集平台评估儿童慢性疼痛：PROBE系统。
Stud Health Technol Inform. 2015;216:554-8.
5
Peer Network Counseling with Urban Adolescents: A Randomized Controlled Trial with Moderate Substance Users.针对城市青少年的同伴网络咨询：一项针对中度物质使用者的随机对照试验。
J Subst Abuse Treat. 2015 Nov;58:16-24. doi: 10.1016/j.jsat.2015.06.013. Epub 2015 Jul 9.
6
Using the PhenX Toolkit to Add Standard Measures to a Study.使用PhenX工具包为研究添加标准测量方法。
Curr Protoc Hum Genet. 2015 Jul 1;86:1.21.1-1.21.17. doi: 10.1002/0471142905.hg0121s86.
7
The process of installing REDCap, a web based database supporting biomedical research: the first year.安装REDCap（一个支持生物医学研究的基于网络的数据库）的过程：第一年
Appl Clin Inform. 2014 Nov 19;5(4):916-29. doi: 10.4338/ACI-2014-06-CR-0054. eCollection 2014.
8
Advancing methodologies in Clinical Research Informatics (CRI): foundational work for a maturing field.临床研究信息学（CRI）中的先进方法：一个成熟领域的基础工作。
J Biomed Inform. 2014 Dec;52:1-3. doi: 10.1016/j.jbi.2014.10.007.
9
A comparison of self-esteem and perfectionism in anorexia nervosa and body dysmorphic disorder.神经性厌食症与躯体变形障碍中自尊与完美主义的比较。
J Nerv Ment Dis. 2014 Dec;202(12):883-8. doi: 10.1097/NMD.0000000000000215.
10
The initial response to the Boston marathon bombing: lessons learned to prepare for the next disaster.对波士顿马拉松爆炸案的初步应对：为应对下一场灾难汲取的经验教训。
Ann Surg. 2014 Dec;260(6):960-6. doi: 10.1097/SLA.0000000000000914.
Zotero 插件