SARC (Sarcoma Alliance for Research through Collaboration), Ann Arbor, MI.
Curr Probl Cancer. 2021 Aug;45(4):100772. doi: 10.1016/j.currproblcancer.2021.100772. Epub 2021 Jul 1.
Patient advocates who understand scientific methods and proper research processes can bring valuable perspectives to modern research. This is particularly important in rare cancers like sarcoma as each patient becomes a precious source of information to better diagnose, understand the biology and the effect of treatment. Reviewing approaches used by other cancer patient advocates can provide valuable insights to develop effective research advocates in rare cancers such as sarcoma.
了解科学方法和正确研究流程的患者倡导者，可以为现代研究带来宝贵的视角。在肉瘤等罕见癌症中，这一点尤为重要，因为每位患者都是更好地诊断、了解生物学和治疗效果的宝贵信息来源。回顾其他癌症患者倡导者所采用的方法，可以为开发肉瘤等罕见癌症的有效研究倡导者提供有价值的见解。
