让倡导者参与癌症研究。
Involving Advocates in Cancer Research.
作者信息
Perlmutter Jane, Roach Nancy, Smith Mary Lou
机构信息
The Gemini Group, Ann Arbor, MI.
Fight Colorectal Cancer, Alexandria, VA.
出版信息
Semin Oncol. 2015 Oct;42(5):681-5. doi: 10.1053/j.seminoncol.2015.07.008. Epub 2015 Jul 9.
Advocates can play an important role in cancer research. In 2010, the National Cancer Institute (NCI) Advocate in Research Working Group (ARWG) defined a "research advocate" as an individual who brings and can convey a nonscientific viewpoint to the research process and can communicate a collective patient perspective through knowledge of multiple disease experiences. Experiences cited in this review are related to publically funded research. They, exemplify challenges and successes of advocate engagement and involvement in the cancer research process.
倡导者在癌症研究中可发挥重要作用。2010年，美国国立癌症研究所（NCI）研究倡导者工作组（ARWG）将“研究倡导者”定义为能够为研究过程带来并传达非科学观点，且能通过了解多种疾病经历来传达患者集体观点的个人。本综述中引用的经历与公共资助的研究相关。它们例证了倡导者参与癌症研究过程中的挑战与成功。
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