White Victoria, Der Vartanian Carolyn, Tansley Fiona, Ugalde Anna
School of Psychology, Deakin University, Burwood Victoria, Australia.
Cancer Australia, Surrey Hills, NSW, Australia.
Fam Pract. 2021 Nov 24;38(6):786-792. doi: 10.1093/fampra/cmab048.
Shared breast cancer follow-up care involving a breast cancer specialist and a general practitioner (GP) has been demonstrated to be effective, yet barriers to participation in this model by women remain. This study explores the responses of women who recently finished active treatment for early breast cancer (EBC) to a proposed model of shared follow-up care to understand the type of information needed to support participation.
Qualitative study based on focus groups with women with EBC in the early stage of follow-up care from across metropolitan, regional and rural settings in Australia. Discussions were transcribed and thematic analysis is undertaken.
Four focus groups were conducted, involving 31 women aged between 32 and 78 years. The discussion focused on two topics. In the first topic 'Current experiences of follow-up care', two themes emerged: (i) follow-up as a continuation of active treatment; (ii) GPs involvement in care during active treatment influence attitudes to shared follow-up care. In the second topic area 'Perceptions of shared follow-up care' four themes emerged: (i) a need for evidence regarding model effectiveness; (ii) choice; (iii) concerns regarding capacity and capability of GPs to deliver care and (iv) the need for clear communication between GPs, specialists and women.
Women need information regarding the evidence for the effectiveness of shared follow-up care to assure them it does not pose a risk to their health outcomes. Clear descriptions of GP and specialist roles and the opportunity to jointly decide participation is essential for the model to be adopted.
由乳腺癌专科医生和全科医生共同进行乳腺癌后续护理已被证明是有效的，但女性参与这种模式仍存在障碍。本研究探讨了近期完成早期乳腺癌（EBC）积极治疗的女性对拟议的共同后续护理模式的反应，以了解支持参与所需的信息类型。
基于焦点小组的定性研究，研究对象为澳大利亚大都市、地区和农村地区处于后续护理早期阶段的EBC女性。讨论内容被转录并进行了主题分析。
进行了四个焦点小组讨论，涉及31名年龄在32岁至78岁之间的女性。讨论集中在两个主题上。在第一个主题“当前后续护理经历”中，出现了两个主题：（i）后续护理是积极治疗的延续；（ii）全科医生在积极治疗期间参与护理会影响对共同后续护理的态度。在第二个主题领域“对共同后续护理的看法”中，出现了四个主题：（i）需要有关模式有效性的证据；（ii）选择；（iii）对全科医生提供护理的能力和资质的担忧；（iv）全科医生、专科医生和女性之间需要清晰的沟通。
女性需要有关共同后续护理有效性证据的信息，以确保这不会对她们的健康结果构成风险。对全科医生和专科医生角色的清晰描述以及共同决定参与的机会对于采用该模式至关重要。
