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法国女性对乳腺癌治疗后管理的认知和体验,以及她们对全科医生在随访护理中角色的看法:一项定性研究。

French women's representations and experiences of the post-treatment management of breast cancer and their perception of the general practitioner's role in follow-up care: A qualitative study.

机构信息

Department of General Medicine, Faculty of Medicine of Clermont-Ferrand, Université d'Auvergne, Clermont-Ferrand, France.

EA 7280 NPsy-Sydo, University of Auvergne, Clermont-Ferrand, France.

出版信息

Health Expect. 2017 Aug;20(4):788-796. doi: 10.1111/hex.12518. Epub 2016 Nov 29.

DOI:10.1111/hex.12518
PMID:27899006
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5513018/
Abstract

BACKGROUND

In France, the Cancer Plan II 2009-2013 was launched to improve post-cancer management and promote greater involvement of general practitioners (GPs) in follow-up care.

OBJECTIVES

We investigated how women experienced the post-treatment management of breast cancer and perceived the role of the GP in follow-up care.

DESIGN

We conducted a qualitative study based on semi-structured interviews with women with breast cancer in remission. The interviews were transcribed and analysed in accordance with the principles of thematic analysis.

SETTING AND PARTICIPANTS

We interviewed 21 patients aged between 30 and 86. Eighteen breast cancer survivors were recruited from GP practices and five from a patients' association.

RESULTS

Four themes emerged from the thematic analysis: that breast cancer is a life-changing event; how patients managed the effects of treatment; how patients viewed the future; and patients' expectations of their GP.

DISCUSSION AND CONCLUSION

French survivors of breast cancer perceived the physical changes caused by their illness to impact their womanhood, leading to difficulties with sexual relations, a diminished sense of self and fears for the future. They felt abandoned at the end of treatment and desired support. They appreciated the ease of contacting their GP but considered follow-up care outside their remit. They agreed to be followed up by their GP, provided that they co-operated closely with a cancer specialist. This is in accordance with the French Cancer Plan II 2009-2013, which recommends greater involvement of GPs in a monitoring protocol shared with cancer specialists.

摘要

背景

在法国,2009-2013 年启动了第二期癌症计划,以改善癌症治疗后的管理,促进更多的全科医生(GP)参与后续护理。

目的

我们调查了女性如何体验乳腺癌的治疗后管理,并感知 GP 在后续护理中的作用。

设计

我们进行了一项基于对缓解期乳腺癌女性的半结构化访谈的定性研究。访谈内容按照主题分析的原则进行了转录和分析。

设置和参与者

我们采访了 21 名年龄在 30 至 86 岁之间的患者。18 名乳腺癌幸存者是从全科医生诊所招募的,5 名是从患者协会招募的。

结果

主题分析得出了四个主题:乳腺癌是一个改变生活的事件;患者如何应对治疗的影响;患者如何看待未来;以及患者对 GP 的期望。

讨论与结论

法国乳腺癌幸存者认为,疾病引起的身体变化会影响她们的女性身份,导致性生活困难、自我意识下降和对未来的恐惧。她们在治疗结束时感到被抛弃,需要支持。她们赞赏与 GP 联系的便利性,但认为随访超出了 GP 的职责范围。只要他们与癌症专家密切合作,他们就愿意由 GP 进行随访。这符合 2009-2013 年法国第二期癌症计划的建议,即建议更多地让全科医生参与与癌症专家共享的监测方案。

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