Department of Agricultural, Food and Nutritional Science, University of Alberta, Edmonton, Alberta, Canada.
Department of Paediatrics, University of Alberta, Edmonton, Alberta, Canada.
Br J Nutr. 2022 Jun 28;127(12):1784-1795. doi: 10.1017/S0007114521002774. Epub 2021 Jul 23.
There are currently no universal evidence-based nutrition guidelines that address the gluten-free (GF) diet for children/youth (4-18 years). A GF food guide was created to help children/youth with coeliac disease (CD) and their families navigate the complexities of following a GF diet. Guide formation was based on pre-guide stakeholder consultations and an evaluation of nutrient intake and dietary patterns. The study objective was to conduct an evaluation on guide content, layout, feasibility and dissemination strategies from end-stakeholder users (children/youth with CD, parents/caregivers and health care professionals). This is a cross-sectional study using a multi-method approach of virtual focus groups and an online survey to conduct stakeholder evaluations. Stakeholders included children/youth (4-18 years), their parents/caregivers in the coeliac community ( 273) and health care professionals ( 80) with both paediatric and CD experience from across Canada. Thematic analysis was performed on focus group responses and open-ended survey questions until thematic saturation was achieved. and Fisher's exact statistical analyses were performed on demographic and close-ended survey questions. Stakeholders positively perceived the guide for content, layout, feasibility, ethnicity and usability. Stakeholders found the material visually appealing and engaging with belief that it could effectively be used in multi-ethnic community and clinical-based settings. Guide revisions were made in response to stakeholder consultations to improve food selection (e.g. child-friendly foods), language (e.g. clarity) and layout (e.g. organisation). The evaluation by end-stakeholders provided practical and patient-focused feedback on the guide to enable successful uptake in community and clinical-based settings.
目前，针对儿童和青少年（4-18 岁）的无麸质（GF）饮食，尚无普遍适用的循证营养指南。本 GF 饮食指南旨在帮助乳糜泻患儿及其家庭应对遵循 GF 饮食的复杂性。指南的制定基于指南制定前的利益相关者磋商，以及对营养素摄入和饮食模式的评估。本研究的目的是从最终利益相关者用户（乳糜泻患儿、父母/照顾者和医疗保健专业人员）的角度，对指南的内容、布局、可行性和传播策略进行评估。这是一项使用虚拟焦点小组和在线调查相结合的多方法横断面研究，旨在进行利益相关者评估。利益相关者包括来自加拿大各地的儿童和青少年（4-18 岁）、乳糜泻社区的父母/照顾者（273 人）和具有儿科和乳糜泻经验的医疗保健专业人员（80 人）。对焦点小组的回应和开放式调查问题进行了主题分析，直到达到主题饱和。对人口统计学和封闭式调查问题进行了 Fisher 确切统计分析。利益相关者对指南的内容、布局、可行性、族裔和可用性给予了积极评价。利益相关者认为该材料具有视觉吸引力和吸引力，并相信它可以有效地用于多种族裔社区和临床环境。根据利益相关者的磋商，对指南进行了修订，以改进食物选择（例如儿童友好型食物）、语言（例如清晰度）和布局（例如组织）。最终利益相关者的评估为指南在社区和临床环境中的成功采用提供了实用和以患者为中心的反馈。
