Ganesh Kausalya, Lazar Amanda
University of Maryland, USA.
Proc ACM Hum Comput Interact. 2021 Apr;5. doi: 10.1145/3449147.
Health disclosure at work is complicated for people with invisible chronic conditions. Due to the lack of visible symptoms, invisible conditions affect the work life of people in ways that are not obvious to others. This study examines how people disclose and conceal their conditions in the workplace and opens the design space for this topic. In the first phase, we analyzed posts on two subreddit forums, r/migraine and r/fibromyalgia, and found a range of strategies that individuals use to disclose or conceal their conditions. In the second phase, we created five technological design concepts based on these strategies that were shown to eight people with migraines or fibromyalgia in semi-structured interviews. Based on these phases, we contribute understandings of disclosure and concealment of invisible conditions in the workplace for future research, such as potential areas for intervention ranging from individual to societal level efforts, as well as the potential and limitations of relying on empathy from others.
对于患有隐形慢性病的人来说，在工作中披露健康状况很复杂。由于缺乏明显症状，隐形疾病以他人不易察觉的方式影响着人们的工作生活。本研究探讨了人们在工作场所如何披露和隐瞒自己的病情，并为该主题开拓了设计空间。在第一阶段，我们分析了两个Reddit论坛r/偏头痛和r/纤维肌痛上的帖子，发现了个人用于披露或隐瞒病情的一系列策略。在第二阶段，我们基于这些策略创建了五个技术设计概念，并在半结构化访谈中向八位偏头痛或纤维肌痛患者展示。基于这些阶段，我们为未来研究贡献了对工作场所隐形疾病披露和隐瞒的理解，例如从个人到社会层面努力的潜在干预领域，以及依靠他人同理心的可能性和局限性。
