Smile Sharon, Williams Alison
Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, Canada.
Member of the Holland Bloorview Research Ethics Board, Toronto, Ontario, Canada.
Paediatr Child Health. 2021 May 22;26(5):276-278. doi: 10.1093/pch/pxab018. eCollection 2021 Aug.
Research offers the potential for new treatments, programs and services, and underlies decisions about funding that can have profound implications for people's lives. When racism in research is not addressed, children and their families will be unjustly impacted by systemic discrimination, exclusion, and inequity. With a growing acknowledgement that racism is a social determinant of health, and as COVID-19 reveals staggering racial disparities, we believe now is the time for intentional anti-racism initiatives throughout the research ecosystem to prevent further harms in patient care and the lives and futures of children. We aim to highlight this need for justice, and conclude with a series of practical recommendations, ranging from the collection and use of race-based data, to equity, diversity, and inclusion (EDI) education, to mentorship opportunities.
研究为新的治疗方法、项目和服务提供了潜力,也是有关资金投入决策的基础,而这些决策可能对人们的生活产生深远影响。当研究中的种族主义问题得不到解决时,儿童及其家庭将受到系统性歧视、排斥和不公平现象的不公正影响。随着越来越多的人认识到种族主义是健康的一个社会决定因素,以及新冠疫情暴露出惊人的种族差异,我们认为现在是时候在整个研究生态系统中开展有意识的反种族主义倡议,以防止在患者护理以及儿童的生活和未来中造成进一步伤害。我们旨在强调这种对公正的需求,并以一系列切实可行的建议作为结尾,这些建议涵盖从基于种族的数据的收集和使用,到公平、多样性和包容性(EDI)教育,再到指导机会等方面。