Centre for Health and Social Care Research, Joint Faculty of Kingston University and St. George's University of London, London, UK.
Department of Nephrology and Transplantation, St. George's University Hospitals NHS Foundation Trust, London, UK.
Health Expect. 2021 Dec;24(6):1979-1987. doi: 10.1111/hex.13337. Epub 2021 Aug 11.
Increasing numbers of patients are receiving dialysis, particularly in high-income countries. Patients receiving haemodialysis often experience fatigue, anxiety, depression and boredom. It is suggested that arts activities could have a therapeutic effect.
This study aimed to explore patients' perspectives of participating while on dialysis in chosen arts and creative living activities provided by tutors at the bedside.
Qualitative semi-structured interviews in the interpretive tradition were conducted, with thematic analysis.
Fifteen patients of different ages, genders and ethnicities who participated in an arts activity while receiving haemodialysis in an inner-city dialysis unit in England were included in this study.
Participants reported positive experiences of engaging in art activities. Their views on the value of the activities were grouped into five themes: diversion from receiving haemodialysis, a sense of achievement, contribution to a more positive self-identity, increased confidence and motivation and a therapeutic talking relationship. Participants suggested that patient peer promotion of the activities could increase uptake, with patient choice of activity seen as important.
Participation in a chosen arts activity while receiving haemodialysis was perceived by patients to have positive psychosocial effects. We theorize three potential explanatory mechanisms for these effects: That the experience of participating in the activities engendered positive psychological states of 'being in the flow'; enhanced self-esteem to add to personal coping mechanisms; and offered additional facets to the patient's identity that countered the stigmatizing effect of receiving dialysis.
Patients and public representatives advised on the design, research methods and tools.
越来越多的患者需要接受透析治疗，尤其是在高收入国家。接受血液透析的患者常经历疲劳、焦虑、抑郁和无聊。有研究表明，艺术活动可能具有治疗效果。
本研究旨在探索患者在接受床边导师提供的选定艺术和创意生活活动时参与的观点。
采用解释传统的定性半结构式访谈，并进行主题分析。
本研究纳入了来自英国市中心透析单位的 15 名不同年龄、性别和种族的接受血液透析治疗的患者，他们参加了艺术活动。
参与者报告了参与艺术活动的积极体验。他们对活动价值的看法分为五个主题：分散接受血液透析的注意力、成就感、对更积极的自我认同的贡献、增强信心和动力以及治疗性的谈话关系。参与者建议通过患者同伴推广活动来增加参与度，同时患者选择活动也被认为很重要。
接受血液透析治疗的患者参与选定的艺术活动被认为具有积极的心理社会影响。我们提出了这三种潜在的解释机制：参与活动所带来的积极体验引发了“沉浸”的心理状态；增强自尊以增加个人应对机制；并为患者身份提供了额外的方面，以抵消接受透析的污名化影响。
患者和公众代表为研究的设计、研究方法和工具提供了建议。
