Rao Huiling, Guo Yiqian, Qiu Luanning, Ren Xiaomei
Department of Medical Engineering, The First Affiliated Hospital of Army Medical University, Chongqing, 400000, People's Republic of China.
Department of Nephrology Clinic Department, The First Affiliated Hospital of Army Medical University, Chongqing, 400000, People's Republic of China.
BMC Nephrol. 2025 Jul 11;26(1):378. doi: 10.1186/s12882-025-04320-y.
Maintenance hemodialysis (MHD) presents significant physical, psychological, and social challenges for young patients, affecting their overall well-being and quality of life. There is a lack of qualitative research on the actual experiences and coping mechanisms of young people aged 18 to 45 years undergoing MHD, and understanding how these patients cope with the multidimensional impact of MHD is crucial for developing effective support strategies. This study aimed to explore the physical, mental, and social health challenges faced by young MHD patients and examine the coping strategies they employ to manage these difficulties.
A qualitative study was conducted through semi-structured interviews with nine MHD patients in a tertiary hospital located in a new first-tier city in China. The interview data were analyzed using Colaizzi's method with the aid of NVivo 14 (QSR International) software, and all patients' information was anonymized to protect their privacy.
We found that the patients faced physical health problems such as fatigue, dizziness, and dry mouth as their treatments continued. In terms of mental health, depression, irritability, and low self-esteem were reported, as well as adverse reactions that also affected the patients' mental well-being. The patients also experienced social adjustment problems, such as difficulties with role identity, barriers to employment, and reduced social participation. They reported using many coping strategies, including self-regulation and seeking outside help. Family and partner support also played an important role in the management of the patients' psychological states.
This study identified complex and interrelated physical, psychological, and social challenges faced by young MHD patients and explored the coping strategies employed by them to cope with these challenges. By revealing the dynamic interplay between these domains, the findings suggest the development of personalized, multidimensional interventions to improve patient quality of life. The study provides new insights into the real-life experiences of young MHD patients and provides practical recommendations for key stakeholders, including healthcare providers, family members, and policy makers. The authors used AI assistance to draft this abstract, followed by thorough review and revision.
Not applicable.
维持性血液透析(MHD)给年轻患者带来了重大的身体、心理和社会挑战,影响着他们的整体健康和生活质量。目前缺乏关于18至45岁接受MHD治疗的年轻人的实际经历和应对机制的定性研究,而了解这些患者如何应对MHD的多维度影响对于制定有效的支持策略至关重要。本研究旨在探讨年轻MHD患者面临的身体、心理和社会健康挑战,并研究他们用以应对这些困难的策略。
在中国一座新一线城市的一家三级医院,对9名MHD患者进行了半结构式访谈,开展了一项定性研究。借助NVivo 14(QSR国际)软件,采用Colaizzi方法对访谈数据进行分析,所有患者信息均匿名以保护其隐私。
我们发现,随着治疗的持续,患者面临疲劳、头晕和口干等身体健康问题。在心理健康方面,报告出现了抑郁、易怒和自卑情绪,以及一些也影响患者心理健康的不良反应。患者还经历了社会适应问题,如角色认同困难、就业障碍和社会参与度降低。他们报告采用了多种应对策略,包括自我调节和寻求外部帮助。家庭和伴侣的支持在患者心理状态的管理中也发挥了重要作用。
本研究确定了年轻MHD患者面临的复杂且相互关联的身体、心理和社会挑战,并探索了他们用以应对这些挑战的策略。通过揭示这些领域之间的动态相互作用,研究结果表明应制定个性化的多维度干预措施以提高患者生活质量。该研究为年轻MHD患者的现实生活经历提供了新见解,并为包括医疗服务提供者、家庭成员和政策制定者在内的关键利益相关者提供了实用建议。作者使用人工智能辅助起草了本摘要,随后进行了全面审核和修订。
不适用。