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评估英国一家大型生物医学研究中心的研究人员参与的患者和公众培训计划。

Evaluation of a patient and public involvement training programme for researchers at a large biomedical research centre in the UK.

机构信息

NIHR Biomedical Research Centre at UCLH, University College London Hospitals NHS Foundation Trust, London, UK

Medical Research Council Clinical Trials Unit at University College London, London, UK.

出版信息

BMJ Open. 2021 Aug 12;11(8):e047995. doi: 10.1136/bmjopen-2020-047995.

Abstract

OBJECTIVES

To design, deliver and evaluate a programme of training workshops for biomedical researchers aimed at building confidence and skills in actively involving patients and the public (PPI) in research.

DESIGN

A bespoke programme of training workshops in PPI aimed at researchers.

SETTING

A large National Institute for Health Research Biomedical Research Centre in London and several partner organisations.

PARTICIPANTS

721 scientists, clinicians and research managers attending dedicated training in PPI at a major London NHS (National Health Service)-university partnership.

INTERVENTIONS

A programme of 72 training workshops, designed to build practical skills and confidence for researchers working with patients and the public in research, was delivered at a major research-active NHS:university partnership. An iterative approach was taken to the programme, with the content of the workshops continually reviewed and refreshed to respond to the needs of researchers. Surveys before, immediately following and 6 months after training investigated the impact on researchers' confidence and skills in PPI work, and the kind of PPI they subsequently carried out.

RESULTS

Training brought about immediate marked increases in researchers' self-reported confidence to carry out PPI activities within their research, and in their knowledge of good practice. The evaluation indicates that workshop attendees were more likely to involve patients in their research following training. Researchers tended to involve patients and the public in a range of areas, including input to study design and patient information, in particular.

CONCLUSIONS

When positioned within a broader organisational strategy for PPI in research, such training has an important role to play in progressing PPI in a major research partnership. Training appeared to provide the confidence needed to carry out PPI which enabled further development of confidence and skills. Involving researchers who have attended the training in the ongoing development of the programme and bringing in patients to the training programme are key next steps.

摘要

目的

为生物医学研究人员设计、提供和评估一项培训计划,旨在增强他们在研究中积极参与患者和公众(PPI)的信心和技能。

设计

一项针对研究人员的 PPI 培训计划。

地点

伦敦的一个大型国家健康研究所生物医学研究中心和几个合作伙伴组织。

参与者

721 名科学家、临床医生和研究经理参加了伦敦一家主要的 NHS(国家卫生服务)-大学合作机构的 PPI 专项培训。

干预措施

为在研究中与患者和公众合作的研究人员提供了一项计划,该计划包括 72 个培训研讨会,旨在建立实践技能和信心。该计划采用迭代方法,不断审查和更新研讨会的内容,以满足研究人员的需求。培训前后和 6 个月后的调查研究了培训对研究人员在 PPI 工作中的信心和技能的影响,以及他们随后进行的 PPI 类型。

结果

培训立即显著提高了研究人员在研究中开展 PPI 活动的自我报告信心和对良好实践的认识。评估表明,培训后,与会者更有可能让患者参与他们的研究。研究人员倾向于让患者和公众参与一系列领域,特别是研究设计和患者信息的投入。

结论

当这种培训在研究中的 PPI 更广泛的组织战略中定位时,它在推进主要研究伙伴关系中的 PPI 方面发挥着重要作用。培训似乎为开展 PPI 提供了所需的信心,从而进一步发展了信心和技能。让参加培训的研究人员参与到计划的持续发展中,并让患者参与到培训计划中是下一步的关键。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f1f2/8362711/9de9677d923a/bmjopen-2020-047995f01.jpg

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