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权力层级:患者与公众参与医疗服务发展的地位

A Hierarchy of Power: The Place of Patient and Public Involvement in Healthcare Service Development.

作者信息

O'Shea Alison, Boaz Annette L, Chambers Mary

机构信息

Centre for Health and Social Care Research, Kingston University & St. George's University, London, United Kingdom.

出版信息

Front Sociol. 2019 May 8;4:38. doi: 10.3389/fsoc.2019.00038. eCollection 2019.

Abstract

Amidst statutory and non-statutory calls for effective patient and public involvement (PPI), questions continue to be raised about the impact of PPI in healthcare services. Stakeholders, policy makers, researchers, and members of the public ask in what ways and at what level PPI makes a difference. Patient experience is widely seen as an important and valuable resource to the development of healthcare services, yet there remain legitimacy issues concerning different forms of knowledge that members of the public and professionals bring to the table, and related power struggles. This paper draws on data from a qualitative study of PPI in a clinical commissioning group (CCG) in the UK. The study looked at some of the activities in which there was PPI; this involved researchers conducting observations of meetings, and interviews with staff and lay members who engaged in CCG PPI activities. This paper explores power imbalances when it comes to influencing the work of the CCG mainly between professionals and members of public, but also between different CCG staff members and between different groups of members of public. The authors conclude that a hierarchy of power exists, with some professionals and public and lay members afforded more scope for influencing healthcare service development than others-an approach which is reflected in the ways and extent to which different forms and holders of knowledge are viewed, managed, and utilized.

摘要

在对有效患者及公众参与(PPI)的法定和非法定呼吁声中,PPI在医疗服务中的影响仍不断受到质疑。利益相关者、政策制定者、研究人员及公众都在问,PPI在哪些方面、在何种程度上能产生影响。患者体验被广泛视为医疗服务发展的一项重要且有价值的资源,但公众和专业人员所带来的不同形式知识的合法性问题以及相关权力斗争依然存在。本文借鉴了对英国一个临床委托小组(CCG)中PPI的定性研究数据。该研究考察了一些存在PPI的活动;这包括研究人员对会议进行观察,以及对参与CCG的PPI活动的工作人员和非专业成员进行访谈。本文探讨了在影响CCG工作方面存在的权力失衡问题,主要存在于专业人员与公众之间,也存在于不同的CCG工作人员之间以及不同公众群体之间。作者得出结论,存在一种权力等级制度,一些专业人员、公众和非专业成员比其他人员在影响医疗服务发展方面有更大的空间——这种情况反映在不同形式和知识持有者被看待、管理和利用的方式及程度上。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/13ce/8022776/41f0e239619f/fsoc-04-00038-g0001.jpg

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