Oakley-Girvan Ingrid, Davis Sharon Watkins, Kurian Allison, Rosas Lisa G, Daniels Jena, Palesh Oxana Gronskaya, Mesia Rachel J, Kamal Arif H, Longmire Michelle, Divi Vasu
Medable Inc, Palo Alto, CA, United States.
Stanford University, Stanford, CA, United States.
JMIR Form Res. 2021 Aug 13;5(8):e22608. doi: 10.2196/22608.
Approximately 6.1 million adults in the United States serve as care partners for cancer survivors. Studies have demonstrated that engaging cancer survivors and their care partners through technology-enabled structured symptom collection has several benefits. Given the high utilization of mobile technologies, even among underserved populations and in low resource areas, mobile apps may provide a meaningful access point for all stakeholders for symptom management.
We aimed to develop a mobile app incorporating user preferences to enable cancer survivors' care partners to monitor the survivors' health and to provide care partner resources.
An iterative information gathering process was conducted that included (1) discussions with 138 stakeholders to identify challenges and gaps in survivor home care; (2) semistructured interviews with clinicians (n=3), cancer survivors (n=3), and care partners (n=3) to identify specific needs; and (3) a 28-day feasibility field test with seven care partners.
Health professionals noted the importance of identifying early symptoms of adverse events. Survivors requested modules on medication, diet, self-care, reminders, and a version in Spanish. Care partners preferred to focus primarily on the patient's health and not their own. The app was developed incorporating quality-of-life surveys and symptom reporting, as well as resources on home survivor care. Early user testing demonstrated ease of use and app feasibility.
TOGETHERCare, a novel mobile app, was developed with user input to track the care partner's health and report on survivor symptoms during home care. The following two clinical benefits emerged: (1) reduced anxiety among care partners who use the app and (2) the potential for identifying survivor symptoms noted by the care partner, which might prevent adverse events.
ClinicalTrials.gov NCT04018677; https://clinicaltrials.gov/ct2/show/NCT04018677.
在美国，约有610万成年人担任癌症幸存者的护理伙伴。研究表明，通过技术支持的结构化症状收集让癌症幸存者及其护理伙伴参与进来有诸多益处。鉴于移动技术的高使用率，即使在服务不足的人群和资源匮乏地区也是如此，移动应用程序可能为所有利益相关者进行症状管理提供一个有意义的接入点。
我们旨在开发一款纳入用户偏好的移动应用程序，使癌症幸存者的护理伙伴能够监测幸存者的健康状况并提供护理伙伴资源。
进行了一个迭代信息收集过程，包括：(1) 与138名利益相关者进行讨论，以确定幸存者家庭护理中的挑战和差距；(2) 对临床医生（n = 3）、癌症幸存者（n = 3）和护理伙伴（n = 3）进行半结构化访谈，以确定具体需求；(3) 与7名护理伙伴进行为期28天的可行性现场测试。
卫生专业人员指出识别不良事件早期症状的重要性。幸存者要求提供关于药物、饮食、自我护理、提醒以及西班牙语版本的模块。护理伙伴更倾向于主要关注患者的健康而非自身。该应用程序结合生活质量调查和症状报告以及家庭幸存者护理资源进行开发。早期用户测试证明了其易用性和应用程序的可行性。
TOGETHERCare是一款新颖的移动应用程序，在用户输入的基础上开发而成，用于在家庭护理期间跟踪护理伙伴的健康状况并报告幸存者症状。出现了以下两个临床益处：(1) 使用该应用程序的护理伙伴焦虑感降低；(2) 有可能识别护理伙伴注意到的幸存者症状，这可能预防不良事件。
ClinicalTrials.gov NCT04018677；https://clinicaltrials.gov/ct2/show/NCT04018677
