8123Nivel, Netherlands Institute for Health Services Research, the Netherlands.
Department of Family Medicine, 168092Maastricht University, CAPHRI Care and Public Health Research Institute, the Netherlands.
Chronic Illn. 2022 Jun;18(2):234-254. doi: 10.1177/17423953211035472. Epub 2021 Aug 17.
Self-management of chronic diseases is rather complex, especially for patients with limited health literacy. In this review, we aim to disentangle the specific difficulties patients with limited health literacy face in relation to self-management and their associated needs with respect to self-management support.
We performed a literature search in five databases. We used a broad definition of health literacy and self-management was categorized into four types of activities: medical management, changing lifestyle, communicating and navigating through the health care system and coping. Included reviews described the relationship between health literacy and different domains of self-management and were published after 2010.
A total of 28 reviews were included. Some clear difficulties of patients with limited health literacy emerged, predominantly in the area of medical management (especially adherence), communication and knowledge. Other associations between health literacy and self-management were inconclusive. Barriers from the patients' perspective described mainly medical management and the communication and navigation of the health care system.
Patients with limited health literacy experience difficulties with specific domains of self-management. For a better understanding of the relationship between health literacy and self-management, a broader conceptualization of health literacy is warranted, including both cognitive and behavioural aspects.
慢性病的自我管理相当复杂,对于健康素养有限的患者来说尤其如此。在本次综述中,我们旨在梳理健康素养有限的患者在自我管理方面面临的具体困难及其在自我管理支持方面的相关需求。
我们在五个数据库中进行了文献检索。我们使用了广泛的健康素养定义,并将自我管理分为四类活动:医疗管理、生活方式改变、沟通和在医疗保健系统中导航以及应对。纳入的综述描述了健康素养与自我管理的不同领域之间的关系,且发表时间均在 2010 年以后。
共纳入 28 篇综述。健康素养有限的患者存在一些明显的困难,主要出现在医疗管理(尤其是依从性)、沟通和知识领域。健康素养与自我管理之间的其他关联尚无定论。患者角度描述的障碍主要集中在医疗管理以及医疗保健系统的沟通和导航方面。
健康素养有限的患者在自我管理的特定领域存在困难。为了更好地理解健康素养与自我管理之间的关系,有必要更广泛地概念化健康素养,包括认知和行为方面。