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癌症中心的癌症信息学:儿科、青少年和青年癌症的信息学、数据科学和护理的科学驱动因素。

Cancer Informatics for Cancer Centers: Scientific Drivers for Informatics, Data Science, and Care in Pediatric, Adolescent, and Young Adult Cancer.

机构信息

Center for Biomedical Informatics and Information Technology, National Cancer Institute, Rockville, MD.

Huntsman Cancer Institute and University of Utah, School of Medicine, Salt Lake City, UT.

出版信息

JCO Clin Cancer Inform. 2021 Aug;5:881-896. doi: 10.1200/CCI.21.00040.

Abstract

Cancer Informatics for Cancer Centers (CI4CC) is a grassroots, nonprofit 501c3 organization intended to provide a focused national forum for engagement of senior cancer informatics leaders, primarily aimed at academic cancer centers anywhere in the world but with a special emphasis on the 70 National Cancer Institute-funded cancer centers. This consortium has regularly held topic-focused biannual face-to-face symposiums. These meetings are a place to review cancer informatics and data science priorities and initiatives, providing a forum for discussion of the strategic and pragmatic issues that we faced at our respective institutions and cancer centers. Here, we provide meeting highlights from the latest CI4CC Symposium, which was delayed from its original April 2020 schedule because of the COVID-19 pandemic and held virtually over three days (September 24, October 1, and October 8) in the fall of 2020. In addition to the content presented, we found that holding this event virtually once a week for 6 hours was a great way to keep the kind of deep engagement that a face-to-face meeting engenders. This is the second such publication of CI4CC Symposium highlights, the first covering the meeting that took place in Napa, California, from October 14-16, 2019. We conclude with some thoughts about using data science to learn from every child with cancer, focusing on emerging activities of the National Cancer Institute's Childhood Cancer Data Initiative.

摘要

癌症中心的癌症信息学(CI4CC)是一个基层的非营利性 501c3 组织,旨在为高级癌症信息学领导者提供一个集中的全国性论坛,主要针对全球各地的学术癌症中心,但特别强调美国国立卫生研究院资助的 70 个癌症中心。该联盟定期举行以主题为重点的两年一度的面对面研讨会。这些会议是审查癌症信息学和数据科学优先事项和计划的场所,为讨论我们在各自机构和癌症中心面临的战略和实际问题提供了一个论坛。在这里,我们提供了最近的 CI4CC 研讨会的会议要点,由于 COVID-19 大流行,该研讨会原定于 2020 年 4 月举行,但被推迟,于 2020 年秋季在三天内(9 月 24 日、10 月 1 日和 10 月 8 日)以虚拟方式举行。除了介绍的内容外,我们还发现每周虚拟举行 6 小时的会议是保持面对面会议所产生的那种深入参与的好方法。这是 CI4CC 研讨会要点的第二次此类发布,第一次涵盖了 2019 年 10 月 14 日至 16 日在加利福尼亚州纳帕举行的会议。我们最后就利用数据科学从每一个患有癌症的孩子身上学习的问题提出了一些看法,重点介绍了美国国立卫生研究院儿童癌症数据倡议的新活动。

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