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关爱痴呆症患者的护理:提高利益相关者参与度和决策能力的方法

Dementia Friendly Care: Methods to Improve Stakeholder Engagement and Decision Making.

作者信息

Innes Anthea, Smith Sarah Kate, Bushell Sophie

机构信息

Salford Institute for Dementia and Ageing, School of Health and Society, University of Salford, Salford, UK.

出版信息

J Healthc Leadersh. 2021 Aug 16;13:183-197. doi: 10.2147/JHL.S292939. eCollection 2021.

Abstract

Dementia friendly (DF) is a term that has been increasingly used in the international literature to describe approaches that include and involve people living with dementia within their communities and wider society. How to support the involvement of people living with dementia to achieve dementia friendly care or support outcomes is an area that has begun to receive attention. We begin by introducing the concept of dementia friendly, the policy context and what has already been evidenced via prior reviews and conceptual discussions. We conducted a systematic review following PRISMA guidelines, resulting in the inclusion of nineteen papers that reported on the methods and approaches used to involve people living with dementia in achieving dementia friendly or supportive care outcomes. Five primary themes were identified: the potential of group-based activities to facilitate inclusion and engagement; achieving engagement in decision making; the value of developing tools to help service providers to engage those living with dementia in care decisions; the role of awareness raising and education to support the inclusion of a range of stakeholders in achieving DF support and care outcomes; the need for cultural and contextual sensitivity when seeking to engage stakeholders to achieve positive care outcomes. We conclude by considering how both the underpinning ethos of social citizenship and social inclusion need to be in place alongside a range of approaches that are adapted to fit local contexts and needs to enable the involvement of people living with dementia in achieving dementia friendly care outcomes.

摘要

友好型痴呆症(DF)是一个在国际文献中越来越多地被用来描述各种方法的术语,这些方法旨在让痴呆症患者融入其社区及更广泛的社会并参与其中。如何支持痴呆症患者的参与以实现友好型痴呆症护理或支持成果,是一个已开始受到关注的领域。我们首先介绍友好型痴呆症的概念、政策背景以及先前的综述和概念性讨论已证实的内容。我们按照PRISMA指南进行了系统综述,最终纳入了19篇报告用于让痴呆症患者参与实现友好型痴呆症或支持性护理成果的方法和途径的论文。确定了五个主要主题:基于群体的活动在促进融入和参与方面的潜力;在决策中实现参与;开发工具以帮助服务提供者让痴呆症患者参与护理决策的价值;提高认识和开展教育在支持一系列利益相关者参与以实现DF支持和护理成果方面的作用;在寻求让利益相关者参与以实现积极护理成果时对文化和背景敏感性的需求。我们通过思考社会公民身份和社会包容的基本理念如何需要与一系列适应当地情况和需求的方法同时存在,以使痴呆症患者能够参与实现友好型痴呆症护理成果来得出结论。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/64ec/8379145/861d19c0d8d2/JHL-13-183-g0001.jpg

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