Department of Medicine, University of Udine, Viale Ungheria 20, 33100 Udine, Italy.
Healthy Ageing Network Northern Netherlands, Peizerweg 140H, 9727 AP Groningen, The Netherlands.
Int J Environ Res Public Health. 2022 Aug 19;19(16):10335. doi: 10.3390/ijerph191610335.
The number of community-dwelling people with dementia (PwD) is rising, and the role of their relatives is crucial in addressing and mitigating the implications of dementia on health care systems and on society. We developed a new conceptual framework to promote the collaboration of the community in supporting relatives who are caring for a PwD as well as a range of stakeholders in embracing dementia. A qualitatively driven, multi-method study divided into three phases was performed from 2019 to 2021. A qualitative descriptive study, a mixed-method systematic review and three consensus workshops were conducted, and their results were triangulated. The final version of the Community Collaboration Concept Framework is composed of three main domains based upon seven components: (1) embracing dementia; (2) creating empowerment and a sense of community; (3) collaborating through cocreation and design thinking. The new framework is based on the literature, the synthesis of empirical data and the consensus of a panel of international experts, supporting the global goal of improving community inclusiveness and collaboration. Further studies are needed to confirm its validity, how it should be implemented in practice in various settings and to propose improvements when designing projects based upon it.
社区中痴呆症患者（PwD）的人数正在增加，其亲属在解决和减轻痴呆症对医疗保健系统和社会的影响方面发挥着关键作用。我们开发了一个新的概念框架，以促进社区合作，支持照顾 PwD 的亲属以及一系列利益相关者接受痴呆症。该研究于 2019 年至 2021 年期间分三个阶段进行，采用定性驱动的多方法研究。进行了一项定性描述性研究、一项混合方法系统评价和三次共识研讨会，并对其结果进行了三角剖分。社区合作概念框架的最终版本由三个主要领域组成，基于七个组成部分：（1）接受痴呆症；（2）赋权和社区意识；（3）通过共同创造和设计思维进行合作。新框架基于文献、实证数据的综合以及一组国际专家的共识，支持改善社区包容性和合作的全球目标。还需要进一步的研究来确认其有效性，以及如何在各种环境中实际实施，以及在基于该框架设计项目时提出改进建议。
