Department of Pediatric Hematology, Oncology and Bone Marrow Transplants, Mazumdar Shaw Cancer Center, Bangalore, Karnataka, India.
Samiksha Foundation, Bangalore, India.
Cancer Rep (Hoboken). 2022 Jun;5(6):e1511. doi: 10.1002/cnr2.1511. Epub 2021 Aug 25.
Children diagnosed with haematological and oncology conditions spend long periods of time undergoing treatments in hospital. Treatments are intensive and may include combinations of chemotherapy, radiation, surgery and bone marrow transplants. This often means that they have prolonged hospital stays away from family, friends and familiar environments.
We aimed at starting an activity group and learning centre based in the hospital setting for children undergoing treatment for haematological and oncology conditions.
The activity group and learning centre was set up in a tertiary care hospital under the department of Paediatric Haematology, Oncology and Bone Marrow Transplantation with the support of a local NGO called 'Samiksha Foundation' in Bangalore, India. Children who participated in the programme engaged in learning through participation in the activity groups which engaged in academic and non-academic activities. The activity group and learning centre was piloted in April and May of 2019. During the pilot sessions, 156 children participated in the group. Children of all ages were welcome to attend and were given activities based on their age and learning levels. Until March 2020, the group has seen over 600 children in attendance.
This methods report examines various aspects of the activity group such as setting up of the activity groups, how they are run, the activities conducted in the groups and the effects the group has had on children and their families as reported by them while undergoing treatment.
The overall response to the activity groups was positive and widely accepted among our patient community. The intervention proved to be effective, easy to implement and relatively inexpensive. We hope that by sharing data from our centre, more paediatric units may be able to implement such groups for children.
患有血液和肿瘤疾病的儿童需要在医院接受长时间的治疗。治疗过程密集，可能包括化疗、放疗、手术和骨髓移植的组合。这通常意味着他们需要长时间离开家人、朋友和熟悉的环境住院治疗。
我们旨在在医院环境中为接受血液和肿瘤疾病治疗的儿童设立一个活动小组和学习中心。
该活动小组和学习中心在班加罗尔的一家名为“Samiksha 基金会”的当地非政府组织的支持下，在一家三级保健医院的儿科血液学、肿瘤学和骨髓移植科设立。参与该计划的儿童通过参与学术和非学术活动的活动小组参与学习。该活动小组和学习中心于 2019 年 4 月和 5 月进行试点。在试点期间，有 156 名儿童参加了该小组。欢迎所有年龄段的儿童参加，并根据他们的年龄和学习水平为他们提供活动。截至 2020 年 3 月，该小组已有 600 多名儿童参加。
本方法报告检查了活动小组的各个方面，例如活动小组的设立、如何运作、小组中开展的活动以及小组对正在接受治疗的儿童及其家人的影响，这些都是他们报告的。
活动小组的总体反应是积极的，在我们的患者群体中得到了广泛的认可。该干预措施被证明是有效、易于实施且相对便宜的。我们希望通过分享我们中心的数据，更多的儿科病房能够为儿童实施此类小组。
