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囊性纤维化对患者工作生活的影响:系统评价。

The impact of cystic fibrosis on the working life of patients: A systematic review.

机构信息

Section of Occupational Medicine, Department of Public Health, University of Naples Federico II, Via S. Pansini 5, 80131 Naples, Italy.

Adult Cystic Fibrosis Center, Department of Translational Medical Sciences, University of Naples Federico II, Via S. Pansini 5, 80131 Naples, Italy.

出版信息

J Cyst Fibros. 2022 Mar;21(2):361-369. doi: 10.1016/j.jcf.2021.08.011. Epub 2021 Aug 29.

DOI:10.1016/j.jcf.2021.08.011
PMID:34470710
Abstract

Advances in the treatment and management of cystic fibrosis (CF) have led to a substantial increase in patient life expectancy, thus facilitating healthier lives and labour force participation. This review aimed to address the impact of CF on the occupational functioning of patients. A significant proportion of patients were reported to retain a job on a full- or part-time schedule. Less physically demanding occupations were most frequently performed, perhaps due to CF-related inability to sustain a heavy workload. Disease severity parameters (e.g., lung function measurements, or personal, psycho-social, or economic conditions) have been reported as determinant or co-determinant factors for the development of work-related disability. Although further research is necessary, our results may be useful to inform interdisciplinary CF healthcare management, including the assessment of work function, and to define career counselling plans and workplace risk assessment and management strategies to support the personal, social and professional lives of patients.

摘要

囊性纤维化(CF)治疗和管理方面的进展,使得患者的预期寿命大幅延长,从而促进了他们过上更健康的生活并参与劳动力市场。本综述旨在探讨 CF 对患者职业功能的影响。据报道,相当一部分患者全职或兼职工作。他们从事的职业通常体力劳动强度较低,这可能是由于 CF 导致无法承受繁重的工作量。疾病严重程度参数(例如肺功能测量值或个人、心理社会或经济状况)被认为是导致与工作相关的残疾的决定因素或共同决定因素。尽管还需要进一步的研究,但我们的研究结果可能有助于为跨学科 CF 医疗保健管理提供信息,包括对工作功能的评估,并为职业咨询计划以及工作场所风险评估和管理策略的制定提供依据,以支持患者的个人、社会和职业生活。

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