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本文引用的文献

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Cystic Fibrosis.囊性纤维化
N Engl J Med. 2023 Nov 2;389(18):1693-1707. doi: 10.1056/NEJMra2216474.
2
Understanding and addressing the needs of people with cystic fibrosis in the era of CFTR modulator therapy.理解并满足囊性纤维化患者在 CFTR 调节剂治疗时代的需求。
Lancet Respir Med. 2023 Oct;11(10):916-931. doi: 10.1016/S2213-2600(23)00324-7. Epub 2023 Sep 9.
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Cystic Fibrosis: A Review.囊性纤维化:综述。
JAMA. 2023 Jun 6;329(21):1859-1871. doi: 10.1001/jama.2023.8120.
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Diagnosis and Management of Cystic Fibrosis Exacerbations.囊性纤维化加重的诊断和管理。
Semin Respir Crit Care Med. 2023 Apr;44(2):225-241. doi: 10.1055/s-0042-1760250. Epub 2023 Feb 6.
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Health-Related Quality of Life in Adults with Cystic Fibrosis: Familial, Occupational, Social, and Mental Health Predictors.成年囊性纤维化患者的健康相关生活质量:家庭、职业、社会和心理健康预测因素
Healthcare (Basel). 2022 Jul 21;10(7):1351. doi: 10.3390/healthcare10071351.
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[Content validation for the Chilean population of the quality of life assessment instrument in children, adolescents and adults with Cystic Fibrosis: CFQ-R CYSTIC FIBROSIS QUESTIONNAIRE-REVISED version in Spanish, Chile].[智利囊性纤维化儿童、青少年和成人生活质量评估工具的内容效度验证:西班牙语版智利修订版囊性纤维化问卷(CFQ-R)]
Andes Pediatr. 2022 Jun;93(3):312-326. doi: 10.32641/andespediatr.v93i3.3871.
7
Social support and social isolation in adults with cystic fibrosis: An integrative review.成人囊性纤维化患者的社会支持和社会隔离:综合评价。
J Psychosom Res. 2021 Nov;150:110607. doi: 10.1016/j.jpsychores.2021.110607. Epub 2021 Sep 8.
8
Quality of life and exercise tolerance tools in children/adolescents with cystic fibrosis: Systematic review.囊性纤维化患儿/青少年的生活质量和运动耐量评估工具:系统综述。
Med Clin (Barc). 2022 Jun 10;158(11):519-530. doi: 10.1016/j.medcli.2021.06.025. Epub 2021 Sep 8.
9
The impact of cystic fibrosis on the working life of patients: A systematic review.囊性纤维化对患者工作生活的影响:系统评价。
J Cyst Fibros. 2022 Mar;21(2):361-369. doi: 10.1016/j.jcf.2021.08.011. Epub 2021 Aug 29.
10
New Therapies to Correct the Cystic Fibrosis Basic Defect.新型疗法纠正囊性纤维化基础缺陷。
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波兰版成人囊性纤维化问卷修订版14 +的测量属性

Measurement properties of the Polish version of the Cystic Fibrosis Questionnaire Revised 14+ in the adult population.

作者信息

Snop-Perkowska Dorota, Świtalski Jakub, Fedorowski Jarosław J, Augustynowicz Anna

机构信息

School of Public Health, Centre of Postgraduate Medical Education of Warsaw, 01-826, Warsaw, Poland.

National Tuberculosis and Lung Diseases Research Institute, 01-138, Warsaw, Poland.

出版信息

Sci Rep. 2025 Mar 18;15(1):9264. doi: 10.1038/s41598-025-94184-x.

DOI:10.1038/s41598-025-94184-x
PMID:40102545
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11920500/
Abstract

Measuring the quality of life in patients with cystic fibrosis is an important element of the patient care process. Many tools have been created for this measurement among adults. One of them is the Cystic Fibrosis Questionnaire-Revised 14+ (CFQ-R 14+). Its measurement properties have not been comprehensively assessed in the population of Polish adults. The aim of the study is to verify the construct validity, including structural and criterion validity, as well as internal consistency, of the Polish version of the CFQ-R 14+ in the population of adults with cystic fibrosis. We conducted a cross-sectional survey among adults with cystic fibrosis. After preparing the database, we performed a confirmatory factor analysis (CFA) followed by exploratory factor analysis (EFA) using the parallel analysis method principal axis factoring with Oblimin rotation. Intercorrelations of questionnaire factors and the occurrence of relationships among items for the general scale results was checked. We also presented basic descriptive statistics (mean, median, standard deviation, skewness, kurtosis, minimum and maximum values). The analyses included responses from 220 adult patients. CFA results did not show adequate goodness of fit (χ(1025) = 2112.35, p < 0.001; CFI = 0.831; TLI = 0.814; RMSEA = 0.069; SRMR = 0.074). After EFA, 6 factors were extracted, considering 40 out of 50 questions of the CFQ-R 14+. CFQ-R 14+ may be useful in assessing the quality of life of Polish adult patients with cystic fibrosis. Our analysis demonstrates that the optimal factor structure of the tool in this population includes 6 scales.

摘要

测量囊性纤维化患者的生活质量是患者护理过程中的一个重要环节。针对成年人的这一测量,已经开发了许多工具。其中之一是《囊性纤维化问卷修订版14+》(CFQ-R 14+)。其测量特性在波兰成年人群体中尚未得到全面评估。本研究的目的是验证CFQ-R 14+波兰语版本在成年囊性纤维化患者群体中的结构效度,包括结构效度和效标效度,以及内部一致性。我们对成年囊性纤维化患者进行了横断面调查。在准备好数据库后,我们进行了验证性因子分析(CFA),随后使用平行分析方法主轴因子分析和斜交旋转进行探索性因子分析(EFA)。检查了问卷各因子的相互关系以及总体量表结果中各项目之间关系的出现情况。我们还给出了基本描述性统计量(均值、中位数、标准差、偏度、峰度、最小值和最大值)。分析纳入了220名成年患者的回答。CFA结果显示拟合优度不足(χ(1025) = 2112.35,p < 0.001;CFI = 0.831;TLI = 0.814;RMSEA = 0.069;SRMR = 0.074)。经过EFA,提取了6个因子,考虑了CFQ-R 14+的50个问题中的40个。CFQ-R 14+可能有助于评估波兰成年囊性纤维化患者的生活质量。我们的分析表明,该工具在这一群体中的最佳因子结构包括6个量表。