Lesley Gotlib Conn, Tahmasebi Houman, Meti Nicholas, Wright Frances C, Thawer Alia, Cheung Matthew, Singh Simron
Evaluative Clinical Sciences, Sunnybrook Research Institute, Toronto, Canada.
Odette Cancer Center, Sunnybrook Health Sciences Center, Toronto, Canada.
J Patient Exp. 2021 Aug 31;8:23743735211039328. doi: 10.1177/23743735211039328. eCollection 2021.
During the COVID-19 pandemic, most cancer centers shifted from in-person to virtual cancer care to curb community spread and ensure care continuity. This qualitative descriptive study aimed to understand cancer patient-perceived risks related to COVID-19 and cancer treatment, as well as the patient-perceived and experienced value of virtual care. From June to August 2020, focus groups were conducted with patients under active management or observation for a diagnosed malignancy in Toronto, Canada. A thematic analysis of six focus groups found that most participants worried more about treatment delays than they did about COVID-19 infection. Despite some concern about COVID-19 exposure in the hospital, care delays contributed to increased anxiety among participants who already subscribed to strict safety measures in their everyday lives. Most participants accepted virtual care for some appointment types; however, preference for in-person care was found to sustain the humanistic and therapeutic aspects of cancer care that many participants valued. Nuances in the appropriateness and adequacy of virtual cancer care still need exploration. Preserving the humanistic aspects of care is of paramount importance.
在新冠疫情期间,大多数癌症中心从面对面癌症护理转向虚拟癌症护理,以遏制社区传播并确保护理的连续性。这项定性描述性研究旨在了解癌症患者对与新冠病毒和癌症治疗相关风险的认知,以及患者对虚拟护理的认知和体验价值。2020年6月至8月,对加拿大多伦多正在接受确诊恶性肿瘤积极管理或观察的患者进行了焦点小组访谈。对六个焦点小组的主题分析发现,大多数参与者更担心治疗延迟,而非新冠病毒感染。尽管对在医院接触新冠病毒有所担忧,但护理延迟加剧了那些在日常生活中已采取严格安全措施的参与者的焦虑。大多数参与者接受某些类型预约的虚拟护理;然而,发现对面对面护理的偏好维持了许多参与者所重视的癌症护理的人文和治疗方面。虚拟癌症护理的适宜性和充分性方面的细微差别仍有待探索。保留护理的人文方面至关重要。