Department of Cardiac Surgery, Fujian Branch of Shanghai Children's Medical Center, No.966 of Hengyu Road, Fuzhou, Fujian 350014, China.
Fujian Children's Hospital, No.966 of Hengyu Road, Fuzhou, Fujian 350014, China.
Int J Qual Health Care. 2021 Sep 25;33(3). doi: 10.1093/intqhc/mzab133.
OBJECTIVE: The purpose of this study was to investigate the effect of using telemedicine to improve the quality of life of parents of infants with congenital heart disease (CHD) surgery after discharge. METHODS: A prospective randomized controlled study was conducted in a provincial hospital in China from November 2020 to April 2021 to compare the quality of life of parents of infants with CHD surgery after discharge between the WeChat follow-up group and the outpatient follow-up group. A total of 84 patients (42 in each group) and 168 parents (84 in each group) participated in this study. RESULTS: One month after discharge, the Self-Rating Anxiety Scale (SAS) and Self-Rating Depression Scale (SDS) scores of parents in the intervention group were significantly lower than those in the control group (P < 0.05). Compared with the SAS and SDS scores at discharge, the scores of parents in the intervention group were significantly lower at 1 month after discharge (P < 0.05), while the scores of parents in the control group were similar at 1 month after discharge (P > 0.05). At discharge, in both the intervention group and the control group, the SAS and SDS scores of the mothers were higher than those of the fathers (P < 0.05). One month after discharge, in the control group, the SAS and SDS scores of the mothers were higher than those of the fathers (P < 0.05). One month after discharge, in the intervention group, the SAS and SDS scores of the mothers were similar to those of the fathers (P > 0.05). The comparison of the SAS and SDS scores of parents with different education levels showed that in both the intervention group and control group, the lower the parents' educational levels, the higher their SAS and SDS scores (P < 0.05). One month after discharge, in the control group, the lower the parents' education levels, the higher their SAS and SDS scores (P < 0.05). One month after discharge, in the intervention group, the SAS and SDS scores were similar among parents with different educational levels. The results of the World Health Organization Quality of Life Brief scale showed that the scores of the physiological, psychological, social and environmental fields at 1 month after discharge in the intervention group were significantly higher than those in the control group (P < 0.05). CONCLUSION: Providing health education and medical support to the parents of infants with CHD surgery after discharge via telemedicine can effectively relieve parents' anxiety and depression and improve their quality of life.
目的：本研究旨在探讨应用远程医疗提高先天性心脏病（CHD）术后患儿家长生活质量的效果。
方法：采用前瞻性随机对照研究，在中国某省级医院于 2020 年 11 月至 2021 年 4 月比较微信随访组与门诊随访组 CHD 术后患儿家长出院后生活质量。共纳入 84 例患儿（每组 42 例）及其 168 位家长（每组 84 位）参与本研究。
结果：出院后 1 个月，干预组家长的焦虑自评量表（SAS）和抑郁自评量表（SDS）评分显著低于对照组（P＜0.05）。与出院时的 SAS 和 SDS 评分相比，干预组家长在出院后 1 个月时的评分显著降低（P＜0.05），而对照组家长在出院后 1 个月时的评分相似（P＞0.05）。出院时，干预组和对照组的母亲 SAS 和 SDS 评分均高于父亲（P＜0.05）。出院后 1 个月，对照组母亲的 SAS 和 SDS 评分高于父亲（P＜0.05）。出院后 1 个月，干预组母亲的 SAS 和 SDS 评分与父亲相似（P＞0.05）。不同文化程度家长 SAS 和 SDS 评分比较显示，干预组和对照组家长文化程度越低，SAS 和 SDS 评分越高（P＜0.05）。出院后 1 个月，对照组家长文化程度越低，SAS 和 SDS 评分越高（P＜0.05）。出院后 1 个月，干预组家长文化程度不同，SAS 和 SDS 评分相似。世界卫生组织生活质量简表结果显示，出院后 1 个月干预组家长生理、心理、社会和环境领域的评分显著高于对照组（P＜0.05）。
结论：通过远程医疗为 CHD 术后患儿家长提供健康教育和医疗支持，可有效缓解家长的焦虑和抑郁，提高其生活质量。
Int J Qual Health Care. 2021-9-25
Int J Qual Health Care. 2023-1-14
Zotero 插件