Rajabi Mohammad Mehdi, Begjani Jamalodin, Negarandeh Reza
Department of Pediatric Nursing and Neonatal Intensive Care, School of Nursing and Midwifery, Tehran University of Medical Sciences, Tehran, Iran.
Nursing and Midwifery Care Research Center, School of Nursing and Midwifery, Tehran University of Medical Sciences, Tehran, Iran.
Int J Community Based Nurs Midwifery. 2025 Jan 1;13(1):40-52. doi: 10.30476/ijcbnm.2024.103351.2544. eCollection 2025 Jan.
The primary caregivers of children with congenital heart disease (CHD) after cardiac surgery at home are often their mothers. Therefore, the quality of life (QoL) and treatment adherence (TA) of mothers are crucial for the prognosis of these children. This study evaluated the impact of a mobile educational application on the QoL and TA in mothers of children with CHD undergoing cardiac surgery.
This randomized clinical trial was conducted on 72 mothers of children with CHD referred for cardiac surgery to Children's Medical Center Hospital, Tehran, Iran, from September 2023 to May 2024. Mothers were randomly assigned to intervention (n=36) and control (n=36) groups. The intervention group received the educational app upon discharge and used it for four weeks, while the control group received standard discharge education, which consisted of face-to-face education. Data were collected using a demographic form, the 36-Item Short Form Health Survey (SF-36), and the Modanloo Treatment Adherence Questionnaire at baseline and one month post-intervention. Data were analyzed using SPSS software version 26, with independent t-test, chi-square, and analysis of covariance. A significance level of P<0.05 was considered.
At baseline, no significant differences were observed between the two groups in total score of QoL (P=0.18) and TA (P=0.70). One month post-intervention, the intervention group showed significantly higher total scores in QoL (P<0.001) and TA (P<0.001) compared to the control group.
Using mobile applications in home care education can significantly enhance the QoL and TA in mothers of children with CHD after surgery. IRCT20230816059164N1.
先天性心脏病（CHD）患儿心脏手术后，其家庭中的主要照顾者通常是母亲。因此，母亲的生活质量（QoL）和治疗依从性（TA）对这些患儿的预后至关重要。本研究评估了一款移动教育应用程序对接受心脏手术的CHD患儿母亲的生活质量和治疗依从性的影响。
本随机临床试验于2023年9月至2024年5月在伊朗德黑兰儿童医学中心医院转介进行心脏手术的72名CHD患儿母亲中开展。母亲们被随机分为干预组（n = 36）和对照组（n = 36）。干预组在出院时收到教育应用程序并使用四周，而对照组接受标准出院教育，即面对面教育。在基线和干预后一个月，使用人口统计学表格、36项简短健康调查（SF - 36）和莫丹洛治疗依从性问卷收集数据。使用SPSS 26版软件进行数据分析，采用独立t检验、卡方检验和协方差分析。显著性水平设定为P < 0.05。
在基线时，两组在生活质量总分（P = 0.18）和治疗依从性（P = 0.70）方面未观察到显著差异。干预后一个月，与对照组相比，干预组在生活质量（P < 0.001）和治疗依从性（P < 0.001）方面的总分显著更高。
在家庭护理教育中使用移动应用程序可显著提高CHD患儿术后母亲的生活质量和治疗依从性。IRCT20230816059164N1。
