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The crafting of hope: Contextualising add-ons in the treatment trajectories of IVF patients.希望的构建:在 IVF 患者的治疗轨迹中对附加治疗进行情境化理解。
Soc Sci Med. 2021 Oct;287:114317. doi: 10.1016/j.socscimed.2021.114317. Epub 2021 Aug 14.
2
How common is add-on use and how do patients decide whether to use them? A national survey of IVF patients.附加药物使用的情况有多常见,患者又是如何决定是否使用它们的呢?一项针对试管婴儿患者的全国性调查。
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Patient informed choice in the age of evidence-based medicine: IVF patients' approaches to biomedical evidence and fertility treatment add-ons.在循证医学时代的患者知情选择:IVF 患者对生物医学证据和生育治疗附加手段的态度。
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VALUE study: a protocol for a qualitative semi-structured interview study of IVF add-ons use by patients, clinicians and embryologists in the UK and Australia.VALUE 研究:一项在英国和澳大利亚对 IVF 附加治疗的使用进行定性半结构式访谈研究的方案,研究对象包括患者、临床医生和胚胎学家。
BMJ Open. 2021 May 21;11(5):e047307. doi: 10.1136/bmjopen-2020-047307.
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In vitro fertilization add-ons for the endometrium: it doesn't add-up.体外受精对子宫内膜的附加作用:这并不成立。
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The prevalence, promotion and pricing of three IVF add-ons on fertility clinic websites.生育诊所网站上三种试管婴儿附加服务的流行程度、推广情况和定价。
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What do women undergoing in vitro fertilization (IVF) understand about their chance of IVF success?正在接受体外受精(IVF)的女性对她们的 IVF 成功率有何了解?
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Fertility specialists' views, behavior, and attitudes towards the use of endometrial scratching in Italy.意大利生育专家对子宫内膜搔刮术应用的观点、行为和态度。
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Patient and professional perspectives about using in vitro fertilisation add-ons in the UK and Australia: a qualitative study.患者和专业人士对英国和澳大利亚使用体外受精附加技术的看法:一项定性研究。
BMJ Open. 2023 Jul 26;13(7):e069146. doi: 10.1136/bmjopen-2022-069146.
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"It all depends on why it's red": qualitative interviews exploring patient and professional views of a traffic light system for IVF add-ons.“这完全取决于它变红的原因”:质性访谈探索患者与专业人士对体外受精附加项目红绿灯系统的看法。
Reprod Fertil. 2023 May 1;4(2). doi: 10.1530/RAF-22-0136.
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Endometrial Scratching for Improving Endometrial Receptivity: a Critical Review of Old and New Clinical Evidence.子宫内膜搔刮术改善子宫内膜容受性:旧和新临床证据的批判性回顾。
Reprod Sci. 2023 Jun;30(6):1701-1711. doi: 10.1007/s43032-022-01125-4. Epub 2022 Dec 5.
10
Patient informed choice in the age of evidence-based medicine: IVF patients' approaches to biomedical evidence and fertility treatment add-ons.在循证医学时代的患者知情选择:IVF 患者对生物医学证据和生育治疗附加手段的态度。
Sociol Health Illn. 2023 Feb;45(2):225-241. doi: 10.1111/1467-9566.13581. Epub 2022 Nov 11.

本文引用的文献

1
The prevalence, promotion and pricing of three IVF add-ons on fertility clinic websites.生育诊所网站上三种试管婴儿附加服务的流行程度、推广情况和定价。
Reprod Biomed Online. 2020 Nov;41(5):801-806. doi: 10.1016/j.rbmo.2020.07.021. Epub 2020 Jul 27.
2
The trouble with IVF and randomised control trials: Professional legitimation narratives on time-lapse imaging and evidence-informed care.体外受精和随机对照试验的问题:关于延时成像和循证护理的专业合法化叙事。
Soc Sci Med. 2020 Aug;258:113115. doi: 10.1016/j.socscimed.2020.113115. Epub 2020 Jun 15.
3
The datafication of reproduction: time-lapse embryo imaging and the commercialisation of IVF.生殖的数据化:延时胚胎成像与 IVF 的商业化。
Sociol Health Illn. 2019 Oct;41 Suppl 1(Suppl 1):193-209. doi: 10.1111/1467-9566.12881.
4
Evidence-based medicine and infertility treatment.循证医学与不孕症治疗
Lancet. 2019 Feb 2;393(10170):380-382. doi: 10.1016/S0140-6736(19)30200-4.
5
Balancing Needs and Autonomy: The Involvement of Pregnant Women's Partners in Decisions About cfDNA.平衡需求与自主权:伴侣参与 cfDNA 检测决策。
Qual Health Res. 2019 Jan;29(2):211-221. doi: 10.1177/1049732318796833. Epub 2018 Sep 5.
6
Mitochondrial donation, patient engagement and narratives of hope.线粒体捐赠、患者参与及希望的故事
Sociol Health Illn. 2018 May;40(4):623-638. doi: 10.1111/1467-9566.12631. Epub 2017 Dec 12.
7
Should the HFEA be regulating the add-on treatments for IVF/ICSI in the UK?: FOR: Regulation of the fertility add-on treatments for IVF.英国人类受精与胚胎学管理局(HFEA)是否应该对体外受精/卵胞浆内单精子注射(IVF/ICSI)的附加治疗进行监管?正方观点:对体外受精的生育附加治疗进行监管。
BJOG. 2017 Nov;124(12):1848. doi: 10.1111/1471-0528.14669.
8
Adjuncts in the IVF laboratory: where is the evidence for 'add-on' interventions?IVF 实验室中的辅助手段:“附加”干预的证据在哪里?
Hum Reprod. 2017 Mar 1;32(3):485-491. doi: 10.1093/humrep/dex004.
9
Claims for fertility interventions: a systematic assessment of statements on UK fertility centre websites.生育干预的声明:对英国生育中心网站上声明的系统评估。
BMJ Open. 2016 Nov 27;6(11):e013940. doi: 10.1136/bmjopen-2016-013940.
10
Lack of evidence for interventions offered in UK fertility centres.英国生育中心所提供干预措施缺乏证据支持。
BMJ. 2016 Nov 27;355:i6295. doi: 10.1136/bmj.i6295.

希望的构建:在 IVF 患者的治疗轨迹中对附加治疗进行情境化理解。

The crafting of hope: Contextualising add-ons in the treatment trajectories of IVF patients.

机构信息

Department of People and Organisations, School of Business and Management, Queen Mary University of London, UK.

Department of People and Organisations, School of Business and Management, Queen Mary University of London, UK.

出版信息

Soc Sci Med. 2021 Oct;287:114317. doi: 10.1016/j.socscimed.2021.114317. Epub 2021 Aug 14.

DOI:10.1016/j.socscimed.2021.114317
PMID:34492406
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8505791/
Abstract

The proliferation and popularity of additional treatments in IVF, also known as add-ons, has generated widespread discussion and controversy in the UK, where concerns have addressed the lack of evidence to support the efficacy and safety of these treatments, their cost, and their connection to a wider context of privatisation of fertility treatment. Drawing on 42 interviews with IVF patients, this article explores the role of hope in the appeal of add-ons from the patient perspective. The analysis is presented in two parts: firstly, we investigate the role of hope in patients' decision-making on treatment, contextualising add-ons in the broader trajectory of their IVF experience; secondly, we examine how patients navigate the offer of add-ons, focusing on the role of hope in how they rationalise their decisions on whether to include them in their fertility treatment. Our analysis shows how patients craft their hope to navigate the increasing number of available options in their quest to find the treatment(s) that will "work" for them. We suggest that the imperative for patients to explore all options is intensified with the emergence of add-ons, which produces a novel context and version of a "hope technology".

摘要

辅助生殖技术中额外治疗方法(也称为附加治疗)的增多和普及在英国引发了广泛的讨论和争议。人们关注的问题包括这些治疗方法的疗效和安全性、成本缺乏证据支持,以及它们与生育治疗私有化更广泛背景之间的联系。本文通过对 42 名接受 IVF 治疗的患者的采访,从患者的角度探讨了希望在附加治疗吸引力中的作用。分析分为两部分:首先,我们研究了希望在患者治疗决策中的作用,将附加治疗纳入他们 IVF 经历的更广泛轨迹中;其次,我们考察了患者如何应对附加治疗的提供,重点关注希望在他们如何合理化是否将其纳入生育治疗的决策中的作用。我们的分析表明,患者如何塑造自己的希望,以在寻求对他们有效的治疗方法的过程中,应对越来越多的可用选择。我们认为,随着附加治疗的出现,患者探索所有选择的必要性加剧了,这产生了一种新的“希望技术”的背景和版本。