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1型糖尿病成人患者持续皮下胰岛素输注的生活体验:一项现象学研究

The Lived Experience of Continuous Subcutaneous Insulin Infusion in Adults With Type 1 Diabetes Mellitus: A Phenomenological Inquiry.

作者信息

Callahan Fagan V Renee, Parsons Karen

机构信息

Memorial University of Newfoundland, St. John's, NL, Canada.

出版信息

Glob Qual Nurs Res. 2021 Sep 3;8:2333393620981058. doi: 10.1177/2333393620981058. eCollection 2021 Jan-Dec.

Abstract

Continuous subcutaneous insulin infusion (CSII) is a complex, medical device for the management of Type 1 Diabetes Mellitus (T1DM). There is limited research exploring the everyday experiences living with this device. The purpose of this study was to understand the lived experience of adults using CSII therapy to manage T1DM. Lived experiences from eight individuals were collected through semi-structured interviews and then analyzed using a hermeneutic approach to phenomenology. Four substantive themes with supporting subthemes were identified and represent the essence of participant experiences; that is, living with CSII eventually took ascendancy over managing T1DM.CSII therapy has gained popularity due to reported improvements in metabolic control and flexibility. However, the burden of the responsibility and psychological implications of CSII took ascendancy over T1DM. Living with CSII impacts the psychological well-being of individuals so psychological complications are as important to assess by healthcare professionals as physical and metabolic complications.

摘要

持续皮下胰岛素输注(CSII)是一种用于管理1型糖尿病(T1DM)的复杂医疗设备。关于使用该设备的日常体验的研究有限。本研究的目的是了解使用CSII疗法管理T1DM的成年人的生活体验。通过半结构化访谈收集了八个人的生活体验,然后采用诠释现象学方法进行分析。确定了四个具有支持性子主题的实质性主题,代表了参与者体验的本质;也就是说,使用CSII最终超过了管理T1DM。由于代谢控制和灵活性方面的报道改善,CSII疗法越来越受欢迎。然而,CSII的责任负担和心理影响超过了T1DM。使用CSII会影响个体的心理健康,因此医疗保健专业人员评估心理并发症与身体和代谢并发症同样重要。

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Patch Pumps: Are They All the Same?贴片式泵:它们都一样吗?
J Diabetes Sci Technol. 2019 Jan;13(1):34-40. doi: 10.1177/1932296818795150. Epub 2018 Aug 22.
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Diabetes and Mental Health.糖尿病与心理健康。
Can J Diabetes. 2018 Apr;42 Suppl 1:S130-S141. doi: 10.1016/j.jcjd.2017.10.031.
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Influences on Technology Use and Efficacy in Type 1 Diabetes.对1型糖尿病技术使用及疗效的影响
J Diabetes Sci Technol. 2016 May 3;10(3):647-55. doi: 10.1177/1932296816639315. Print 2016 May.

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