School of Nursing, China Medical University, Taichung 406040, Taiwan.
Nursing Department, China Medical University Hospital, Taichung 406404, Taiwan.
Int J Environ Res Public Health. 2021 Aug 24;18(17):8901. doi: 10.3390/ijerph18178901.
Few studies have focused on developing a better understanding of the needs of patients with moderate-stage dementia. This study aimed to explore the needs of people living with moderate dementia and receiving home-care services from a local mental hospital. The study adopted a descriptive qualitative approach with purposive sampling to recruit patients with moderate dementia and receiving home-care services. Data were collected by face-to-face interviews and content analysis was used to interpret the experiences in the dialogue data. The results showed that the needs of people living with moderate dementia receiving home-care services contained four themes: the demand for company and care, the wish to recall familiar images, the need of reaffirming life purpose and value through reflection and reminiscence, and the desire for making autonomous end-of-life decisions. In addition to daily care, people living with moderate dementia crave companionship, expect meaningful exchanges of experiences to share their life, and have demands to have a voice in going through the final stage of life. The participants tended to focus more on issues related to the connections between living and dying. The results provide caregivers and home-care service providers with some insights into offering better care for people living with moderate dementia.
鲜有研究关注如何更好地满足中度痴呆患者的需求。本研究旨在探讨从中度痴呆症中康复并接受当地精神病院家庭护理服务的患者的需求。本研究采用描述性定性方法和目的抽样法招募了中度痴呆症且接受家庭护理服务的患者。通过面对面访谈收集数据，并使用内容分析法对对话数据中的经验进行解释。结果表明，接受家庭护理服务的中度痴呆症患者的需求包含四个主题：陪伴和关怀的需求、回忆熟悉形象的愿望、通过反思和怀旧重新确认生活目标和价值的需求，以及自主决定临终事宜的愿望。除了日常护理，中度痴呆症患者渴望陪伴，希望进行有意义的经验交流，分享他们的生活，并希望在生命的最后阶段有发言权。参与者往往更关注与生死联系相关的问题。研究结果为护理人员和家庭护理服务提供者提供了一些见解，以便为中度痴呆症患者提供更好的护理。
