J Hosp Palliat Nurs. 2021 Dec 1;23(6):579-583. doi: 10.1097/NJH.0000000000000801.
The aim of this study was to investigate the experiences and needs of Aboriginal community members with regard to rural community-based palliative care. Conversations with Aboriginal Elders were conducted. (In this Aboriginal community, Elders was not confined to older age. It referred to community leaders and includes [younger] emerging leaders.) The results were analyzed using descriptive analysis. Our study showed that there was a general lack of understanding of palliative care as distinct from curative care and limited awareness of services available. There was a strong need for clear information and on-call and practical support. Some concerns were expressed regarding limited awareness among health care providers of specific cultural needs. However, the home-based nature of palliative care was not, in itself, perceived as a barrier, provided that appropriate respect was displayed. We concluded that the current lack of understanding and awareness of services still impedes access to, and utilization of, care. More attention is needed for specific cultural needs. Adoption of a cultural humility approach for the promotion and delivery of palliative care seems to best fit the expressed needs and experiences of the participants.
本研究旨在探讨原住民社区成员对农村社区为基础的姑息治疗的体验和需求。我们与原住民长者进行了交谈。（在这个原住民社区中，“长者”并不限于老年人。它指的是社区领袖，包括[较年轻的]新兴领袖。）我们使用描述性分析对结果进行了分析。我们的研究表明，人们普遍缺乏对姑息治疗与治愈性治疗的区别的理解，对现有服务的认识也很有限。人们强烈需要明确的信息、随叫随到的支持和实际支持。有人对医疗服务提供者对特定文化需求的认识有限表示担忧。然而，只要能表现出适当的尊重，姑息治疗的家庭式性质本身并不会被视为障碍。我们的结论是，目前对服务的了解和认识不足仍然阻碍了人们获得和利用护理。需要更加关注特定的文化需求。为了促进和提供姑息治疗，采用文化谦逊方法似乎最符合参与者的表达需求和体验。
