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The effect of social feedback from peers on adolescent cognitive control.同伴的社会反馈对青少年认知控制的影响。
J Adolesc. 2020 Dec;85:12-20. doi: 10.1016/j.adolescence.2020.09.010. Epub 2020 Oct 3.
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[Not Available].[无可用内容]。
Kinderkrankenschwester. 2017 Jan;36(1):20-29.
3
Future health of AYA survivors.青少年及年轻成人幸存者的未来健康。
Pediatr Blood Cancer. 2019 Feb;66(2):e27516. doi: 10.1002/pbc.27516. Epub 2018 Oct 26.
4
Standards for the Psychosocial Care of Children With Cancer and Their Families: An Introduction to the Special Issue.癌症患儿及其家庭心理社会护理标准:特刊引言
Pediatr Blood Cancer. 2015 Dec;62 Suppl 5(Suppl 5):S419-24. doi: 10.1002/pbc.25675. Epub 2015 Sep 23.
5
Psychosocial and Neurocognitive Outcomes in Adult Survivors of Adolescent and Early Young Adult Cancer: A Report From the Childhood Cancer Survivor Study.青少年和青年早期癌症成年幸存者的心理社会和神经认知结局:来自儿童癌症幸存者研究的报告。
J Clin Oncol. 2015 Aug 10;33(23):2545-52. doi: 10.1200/JCO.2014.57.7528. Epub 2015 Jul 6.
6
Survivorship after childhood cancer: PanCare: a European Network to promote optimal long-term care.儿童癌症幸存者关怀:泛欧儿童癌症幸存者关怀网络(PanCare):一个促进最佳长期护理的欧洲网络。
Eur J Cancer. 2015 Jul;51(10):1203-11. doi: 10.1016/j.ejca.2015.04.002. Epub 2015 May 6.
7
Cancer survivors' self-efficacy to self-manage in the year following primary treatment.癌症幸存者在初次治疗后一年内自我管理的自我效能感。
J Cancer Surviv. 2015 Mar;9(1):11-9. doi: 10.1007/s11764-014-0384-0. Epub 2014 Jul 16.
8
Parents' perspectives of life challenges experienced by long-term paediatric brain tumour survivors: work and finances, daily and social functioning, and legal difficulties.长期儿科脑肿瘤幸存者父母对其所经历生活挑战的看法:工作与财务、日常与社交功能以及法律困境。
J Cancer Surviv. 2014 Sep;8(3):372-83. doi: 10.1007/s11764-013-0331-5. Epub 2014 Feb 22.
9
Health-related quality of life of adolescent and young adult patients with cancer in the United States: the Adolescent and Young Adult Health Outcomes and Patient Experience study.美国癌症青少年和青年患者的健康相关生活质量:青少年和青年健康结局与患者体验研究。
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Correlates of social support in young adults with advanced cancer.晚期癌症青年患者社会支持的相关因素。
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奥地利青年期癌症幸存者的心理社会支持计划:一项定性评估研究。

A Psychosocial Support Program for Young Adult Childhood Cancer Survivors in Austria: a Qualitative Evaluation Study.

机构信息

Department of Pediatrics and Adolescent Medicine, Medical University of Vienna, Vienna, Austria.

Austrian Childhood Cancer Organization, Vienna, Austria.

出版信息

J Cancer Educ. 2023 Feb;38(1):96-105. doi: 10.1007/s13187-021-02083-2. Epub 2021 Sep 14.

DOI:10.1007/s13187-021-02083-2
PMID:34519981
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9852182/
Abstract

Many adolescents and young adult (AYAs) childhood cancer survivors face disease- or therapy-related late-effects, which limit their participation in various areas of daily life. AYAs are often left alone in our health care system, and many worry about their ability to cope with long-term sequelae, and some are even lost to follow-up. Therefore, in the present study, a targeted aftercare program was developed and evaluated with the goal of facilitating three important "life skills": (1) self-perception, (2) social interaction and conflict management, and (3) self-conscious communication of support needs. A total of n = 13 participants (19.2-30.2 years, mean age 22.8 years) completed a 3-day aftercare seminar, at the end of which each participant wrote a reflection letter ("letter to my future self"), elaborating on observed effects of the seminar, applicability of the given information in daily life, and the direct impact of the seminar on their individual circumstances. The reflection letters were analyzed using qualitative content analysis. All target life skills were mentioned in the reflection letters. The participants reported individual benefits from the program especially with respect to self-perception and self-confidence, giving and taking feedback, and acceptance of personal strengths and weaknesses. Moreover, the feeling of "not being alone" was associated with the survivors' experience of emotional and social support. This evaluation highlights the potential of a one weekend aftercare seminar to address important life skills that are known to positively influence health behavior in AYAs. The detailed description of the seminar can serve as a basis for making this kind of aftercare accessible for other people in similar circumstances.

摘要

许多青少年和年轻成人(AYAs)癌症幸存者面临疾病或治疗相关的晚期效应,这限制了他们参与日常生活的各个领域。AYAs 在我们的医疗保健系统中常常被忽视,许多人担心自己应对长期后遗症的能力,有些人甚至失去了随访。因此,在本研究中,开发并评估了一个针对性的后续护理计划,旨在促进三个重要的“生活技能”:(1)自我认知,(2)社会互动和冲突管理,以及(3)有意识地沟通支持需求。共有 n=13 名参与者(19.2-30.2 岁,平均年龄 22.8 岁)完成了为期 3 天的后续护理研讨会,在研讨会结束时,每位参与者都写了一封反思信(“给未来自己的信”),阐述了研讨会观察到的效果、给定信息在日常生活中的适用性,以及研讨会对他们个人情况的直接影响。使用定性内容分析对反思信进行了分析。所有目标生活技能都在反思信中提到。参与者报告了该计划的个人收益,特别是在自我认知和自信、给予和接受反馈,以及接受个人优点和缺点方面。此外,“不孤单”的感觉与幸存者的情感和社会支持体验相关。这种评估突出了一个为期周末的后续护理研讨会的潜力,该研讨会可以解决已知对 AYA 健康行为产生积极影响的重要生活技能。研讨会的详细描述可以作为为其他处于类似情况的人提供这种后续护理的基础。