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奥地利青年期癌症幸存者的心理社会支持计划:一项定性评估研究。

A Psychosocial Support Program for Young Adult Childhood Cancer Survivors in Austria: a Qualitative Evaluation Study.

机构信息

Department of Pediatrics and Adolescent Medicine, Medical University of Vienna, Vienna, Austria.

Austrian Childhood Cancer Organization, Vienna, Austria.

出版信息

J Cancer Educ. 2023 Feb;38(1):96-105. doi: 10.1007/s13187-021-02083-2. Epub 2021 Sep 14.

Abstract

Many adolescents and young adult (AYAs) childhood cancer survivors face disease- or therapy-related late-effects, which limit their participation in various areas of daily life. AYAs are often left alone in our health care system, and many worry about their ability to cope with long-term sequelae, and some are even lost to follow-up. Therefore, in the present study, a targeted aftercare program was developed and evaluated with the goal of facilitating three important "life skills": (1) self-perception, (2) social interaction and conflict management, and (3) self-conscious communication of support needs. A total of n = 13 participants (19.2-30.2 years, mean age 22.8 years) completed a 3-day aftercare seminar, at the end of which each participant wrote a reflection letter ("letter to my future self"), elaborating on observed effects of the seminar, applicability of the given information in daily life, and the direct impact of the seminar on their individual circumstances. The reflection letters were analyzed using qualitative content analysis. All target life skills were mentioned in the reflection letters. The participants reported individual benefits from the program especially with respect to self-perception and self-confidence, giving and taking feedback, and acceptance of personal strengths and weaknesses. Moreover, the feeling of "not being alone" was associated with the survivors' experience of emotional and social support. This evaluation highlights the potential of a one weekend aftercare seminar to address important life skills that are known to positively influence health behavior in AYAs. The detailed description of the seminar can serve as a basis for making this kind of aftercare accessible for other people in similar circumstances.

摘要

许多青少年和年轻成人(AYAs)癌症幸存者面临疾病或治疗相关的晚期效应,这限制了他们参与日常生活的各个领域。AYAs 在我们的医疗保健系统中常常被忽视,许多人担心自己应对长期后遗症的能力,有些人甚至失去了随访。因此,在本研究中,开发并评估了一个针对性的后续护理计划,旨在促进三个重要的“生活技能”:(1)自我认知,(2)社会互动和冲突管理,以及(3)有意识地沟通支持需求。共有 n=13 名参与者(19.2-30.2 岁,平均年龄 22.8 岁)完成了为期 3 天的后续护理研讨会,在研讨会结束时,每位参与者都写了一封反思信(“给未来自己的信”),阐述了研讨会观察到的效果、给定信息在日常生活中的适用性,以及研讨会对他们个人情况的直接影响。使用定性内容分析对反思信进行了分析。所有目标生活技能都在反思信中提到。参与者报告了该计划的个人收益,特别是在自我认知和自信、给予和接受反馈,以及接受个人优点和缺点方面。此外,“不孤单”的感觉与幸存者的情感和社会支持体验相关。这种评估突出了一个为期周末的后续护理研讨会的潜力,该研讨会可以解决已知对 AYA 健康行为产生积极影响的重要生活技能。研讨会的详细描述可以作为为其他处于类似情况的人提供这种后续护理的基础。

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Kinderkrankenschwester. 2017 Jan;36(1):20-29.
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Future health of AYA survivors.青少年及年轻成人幸存者的未来健康。
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